Log In Sign Up

Ava's therapy coordinator


Forum: Children with Special Needs

Notices

Welcome to the JustMommies Message Boards.

We pride ourselves on having the friendliest and most welcoming forums for moms and moms to be! Please take a moment and register for free so you can be a part of our growing community of mothers. If you have any problems registering please drop an email to boards@justmommies.com.

Our community is moderated by our moderation team so you won't see spam or offensive messages posted on our forums. Each of our message boards is hosted by JustMommies hosts, whose names are listed at the top each board. We hope you find our message boards friendly, helpful, and fun to be on!

Reply Post New Topic
  Subscribe To Children with Special Needs LinkBack Topic Tools Search this Topic Display Modes
  #1  
April 20th, 2009, 01:16 PM
Ditzzy's Avatar Stupid Lamb;)
Join Date: Sep 2007
Location: OH-IO
Posts: 9,023
Send a message via Yahoo to Ditzzy
I met Ava's therapy coordinator this morning. Ironically she's an RN that worked for years on the trach/vent floor and knows Ava's new medical team. I thought we'd do the evaluation, but as it turns out Ava does not need evaluated since she has a diagnosis (verified by more than two doctors) and has been accepted by the CMH (Children with medical handicaps).

What I like:
In home therapy
She knows exactly what is wrong with Ava and has experience with it.
If anything is denied by our insurance, CMH might cover it.

What I don't like:
She informed me that she believes Ava may have an airway put in because she is so delayed. That it's "blatently obvious" that Ava is using any extra energy on breathing when she should be using that energy on gross motor skills. (I really wanted to like her until she said this)

She also said she feels Ava needs tested for cerebral palsy. I don't see muscle tone issues. ??

I don't know what to say about it all. I think I'd like to remain in denial for 2 more weeks! I'm counting on this new medical team to tell me Ava is 100% cured of everything. *sigh* That's just not gonna happen, is it?
__________________




Thank you, tasha_mae, for my siggy!

Last edited by Ditzzy; April 20th, 2009 at 01:19 PM.
Reply With Quote
  #2  
April 20th, 2009, 02:18 PM
stacyp's Avatar Mommy to Andrew & Luke
Join Date: Nov 2005
Location: OHIO
Posts: 17,229
((HUGS)) Hopefully her opinion is wrong. Please KUP, I will be thinking of you.

As far as the CP, wouldn't someone have noticed if they thought she might?
__________________



Thanks Yvonne (Jaidynsmum) for my beautiful siggy!














Reply With Quote
  #3  
April 20th, 2009, 04:11 PM
Ditzzy's Avatar Stupid Lamb;)
Join Date: Sep 2007
Location: OH-IO
Posts: 9,023
Send a message via Yahoo to Ditzzy
Quote:
Originally Posted by stacyp View Post
((HUGS)) Hopefully her opinion is wrong. Please KUP, I will be thinking of you.

As far as the CP, wouldn't someone have noticed if they thought she might?
That's what I was thinking too. Ava is behind, but her muscle tone seems fine to me. She has an mri soon, I guess that would show CP? I highly doubt she has it. I refuse to stress until a doctor tells me she has it.
__________________




Thank you, tasha_mae, for my siggy!
Reply With Quote
  #4  
April 20th, 2009, 05:24 PM
stacyp's Avatar Mommy to Andrew & Luke
Join Date: Nov 2005
Location: OHIO
Posts: 17,229
i totally agree. I wouldn't stress about her conversation, period, until you talk to her docs.

I think they go on assessment alone. But, I could be wrong.
__________________



Thanks Yvonne (Jaidynsmum) for my beautiful siggy!














Reply With Quote
  #5  
April 21st, 2009, 12:56 PM
iamkc's Avatar Platinum Supermommy
Join Date: Aug 2005
Location: Montana
Posts: 8,137
Send a message via AIM to iamkc
(((HUGS))) I wonder if most people in medicine don't understand that they can't just mention something like that off-handedly, or so nonchalantly. I'm so sorry. I hope that her opinion is wrong. Milo is technically classified as CP right now for his Early Intervention therapies, but he has some pretty impressive muscle tone issues. (They're getting better, though!)

I'd definitely wait to stress AFTER getting a true medical opinion. I wish that everyone would talk to each other before blurting stuff like that to parents. *sigh*

(((HUGS))) again. KUP on what the doctors say!
Reply With Quote
Reply

Topic Tools Search this Topic
Search this Topic:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off



All times are GMT -7. The time now is 10:39 AM.



Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2014, vBulletin Solutions, Inc.
Search Engine Optimization by vBSEO 3.6.0