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Forum: Children with Special Needs

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  #1  
April 28th, 2009, 05:13 AM
Ditzzy's Avatar Stupid Lamb;)
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Does your LO have any doctors you don't like? Any you love?

****************************

I think there's a rule that brilliant Drs have horrible bedside manner. (like Dr House). Ava's new ENT is the best upper airway doc in the US (he specializes in airway reconstruction), but he's a jerk. His nurses even warned me beforehand. He also has a very thick brittish accent, so understanding him is hard, if he even talks, which is rare.
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  #2  
April 28th, 2009, 08:17 AM
quietsong's Avatar Just Another Slacker Mom
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You know, I am blessed...truly blessed. Of course, I've had more than my share of doctors that suck, including some of the people that are still following him. But our two main doctors, his pedi and his ENT, are incredible.

I thank God for Danny's pediatrician, he is the best person I could ever hope for: very laid back, very much relies on my intuition and beliefs to guide things, and yet is so knowledgable and on top of everything. He called me the morning after Danny's hearing loss diagnosis - I didn't even think he would get the results that quickly - and walked me through what he thought I should do next. Any time I take either of the boys in, he makes time to ask about the other as well, and always comes in totally in the know. Eric's old ped, I would go in and he would ask me the same questions time and again ... he asked me if Eric could crawl for 4 appointments straight, even though I'd said yes the first time. Dr. A comes in and it's like our last appointment was the day before because he knew exactly where we'd been - plus knew any results or things that had come to him since. The first time we went in for an office visit he brought in Danny's entire folder, said he'd taken it home the night before to read it (!!!) but wanted it there as well in case he wanted to refresh anything.

It's thanks to Danny's ped that we have our ENT; Dr. A basically said "Call this practice, here is the number. You want one of these doctors, in this order." And then listed off the doctors there by his preference. I got the top choice, Dr. Clary. He is one of the best doctors in the country for pediatric ear defects and cochlear implants; one of his recent research studies and reports was on the benefits and risks of cochlear implantation in children 2 and younger, published nation-wide! Plus, he defies the Dr. House rule ... he's an amazing guy. He's considerate, always asks my opinion on things before giving his recommendations, explains thoroughly without making me feel like he's talking down to me, and is just plain nice. He genuinely cares about the kids, and the parents.
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  #3  
April 28th, 2009, 11:34 AM
docsmomma's Avatar Platinum Supermommy
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Joey's primary oncologist is amazing. I love her. After biopsy she kept us updated on everything, even told us the prelim results before we had a final result and that got us through the weekend. She even gave me the web address to the Histio Association of America which has been an amzing resource. When she sees him (out side of appointments and such) she always knows him by name and asks about him and the older kids as well. I like MOST of the oncology team. I had a few days I hated one doctor but once he realized why I was so adamant on having a copy of all test results he came around. Nurse wise there is 1 nurse I can't stand. She makes me feel guilty if I need to go to the cafeteria to get somethign to eat when he's inpatient. She's getting a bit better, but maybe thats me just getting a bit tougher emotionally.
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  #4  
April 28th, 2009, 01:06 PM
stacyp's Avatar Mommy to Andrew & Luke
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Luke's ped is fine
Cardiologist is great
DS ped is wonderful
ENT is amazing

His thoracic surgeon was 6' 5" & looked like he should have been a linebacker for the Giants. But he was sweet & shy. Loved him too.

I am definitely satisfied. His first ENT now, that's a different story. His bedside manner was atrocious. And I refused to go back. We lucked into this ENT because he was in the OR the latest the day he needed scoped. LUCKY US.
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  #5  
April 28th, 2009, 01:06 PM
stacyp's Avatar Mommy to Andrew & Luke
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Luke's ped is fine
Cardiologist is great
DS ped is wonderful
ENT is amazing

His thoracic surgeon was 6' 5" & looked like he should have been a linebacker for the Giants. But he was sweet & shy. Loved him too.

I am definitely satisfied. His first ENT now, that's a different story. His bedside manner was atrocious. And I refused to go back. We lucked into this ENT because he was in the OR the latest the day he needed scoped. LUCKY US.
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  #6  
April 28th, 2009, 03:18 PM
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we love all the doc we have now, we have had a few that are not for us, but ended up getting away from them. There are a few nurses that I would love to punch in the face, but i get by.

ditzzy, can i ask, do you go to cincinnati childrens? we have 2 ent's dr cotton and dr arjmand. I doubt its either of them, but i was just curious
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  #7  
April 28th, 2009, 07:28 PM
docsmomma's Avatar Platinum Supermommy
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I was thinking about this today and I remembered 1 person that I hated more than anything. Joey's anasthesiologist for his first surgery. He basically told us that if we signed the consent for surgery we were sending Joey in to die. But we also knew that without this surgery there was no chance. He had no sense of compassion. I know he had to tell us the risks but he put it in such a way that everyone in the room felt that he said Joey had no chance of pulling through.
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  #8  
April 29th, 2009, 10:34 AM
iamkc's Avatar Platinum Supermommy
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Oh, there are definitely a few! I try to avoid them. The worst is a nurse who has outright lied to me, then when she got in trouble for things not being done to Milo, turned around and blamed me-ALL LIES! I love the doc she works for, though, so I stick it out.

I don't like his ped, but we're having trouble finding another. Very sweet, but many misdiagnoses, wrong doses of meds for both kids, spipping or doubling up immunizations, and so on. She doesn't really learn about Milo's condition. "I'll leave that to the specialists," she says.

He's had a few residents in the hospital I'd like to have a few rounds in a ring with. I'm not violent, I swear, but talking was getting nowhere with them.

His geneticist is tactless. Completely. When we first brought up his probable diagnosis, she said, "Those kids are all weird-looking, like aliens." At the last visit, she was very doom-and-gloom, then said that she was certain that he had CF. No test, just positive that he had it. He had a bad case, too, which is never good. Yep. Nice, huh? The pulmo has tried to reassure us that this is most likely an infection that he has. Ugh.

And more. Really, I like most of them a lot, and they far outweigh the bad ones.
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