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Joey seems to have lost his appetite this round of chemo and they are threatening a feeding tube if he looses any more weight. They told me there are some "great kids drinks" with a higher calorie count than formula that I could find and use but they won't suggest one because of his age. Anyone have any ideas? I can just see him yanking a feeding tube out... he's pulled every other line we've had on him out (his port access he pulled out 2x!).
Poor Joey. We DO use plenty of drinks. We have been fortifying breastmilk or mixing formula to 27 calories instead of the regular 20. I'm sure that Joey wouldn't be interested in either of those. There's something called Duocal by Neocate that you can add to the things that he will eat or drink (yes, even to food-it's great!). Pediasure, Boost, all of those are good, too, but again, Duocal can be mixed with a lot of foods, which may REALLY help! It comes in a can, has fat and carbs, and can be sort of expensive. HOWEVER, you can sometimes find it on ebay pretty inexpensively-there are a couple of good auctions going on right now (just checked)! Check craigslist, or post for it. I don't know about other areas, but we have people posting for theirs all the time. You may be able to find it through a local enteral feeding supply place if you can't find it elsewhere (and online, of course-Froogle has decent listings).
If a kid really needs it, then a feeding tube is great, but if Joey can avoid it and can get his calories elsewhere, that would be even better! Good luck! I hope that he feels better soon!
Oh, and since Joey is a little older, cooking everything in olive oil (or canola) is a good trick. We've had to do that for Kannon-he eats almost everything, but when he was having trouble with sleep apnea, he started dropping weight SCARY-quickly! Olive oil, full-fat dairy, avocado, nuts, etc.
THANK YOU. How do you mix formula to higher calorie? He has pretty much stopped eating any solids because he feels so lousy. As long as he doesn't lose any more weight and keeps having wet diapers we can keep him off the feeding tube, which i'd really like to try to avoid, but if we need it, we need it and I will not argue with that.
How old is he? Pediasure is for kids ages 1-10. Kyle has been on a few kid formulas, and is now on Nutren jr. w/fiber. It's 30cal/oz.
If you're still on infant formula - you can concentrate it pretty easily. I used to buy consentrate cans, because Kyle didn't take to the powders very well. The instructions will have you mix to 20cal/oz. So just change the concentration from there based on the number of calories you want per oz. Kyle's infant breakdown didn't allow us to exceed 28cal/oz unless we added MCT or Canola Oil. With 1tsp, added to the 28kcal concentrate, it totaled 30kcal. As a 'child' - we just use the 30kcal formula (brands like pediasure, bright beginnings, and nutren all fall under that).
We had to double the amount of formula to have extra calories. She was using powder, so we used twice the scoops. 4 scoops per 4 ounces. We also added rice. 1 TBSP per every 1-2 ounces. This was fortified with breast milk and we added simply thick for a while too.
She was on that recipe for her first year. KUP Hon!
There is also Neosure, it is designed for preemie babies, but is regular formula already mixed to a higher calorie. We couldnt use it due to the milk thing, but it can save you some money. The cans cost the same as regular formula, instead of buying more formula so that you can mix it yourself