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Forum: Children with Special Needs

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  #1  
May 22nd, 2009, 07:38 AM
iamkc's Avatar Platinum Supermommy
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Milo will have to have GA for his MRI. The ped finally got through to them yesterday and we have an appointment for Tuesday! They only do it on Tuesday and Thursday with GA, so YAY! At least, we're assuming it's this coming Tuesday...I can't imagine that it would be the following one. Now I'm all nervous wondering!

Because of the problems that Milo has been having, we're keeping him on oxygen pretty much all through the day. If he seems to be doing well, I give him a break. I keep his monitor on, though. When he's eating, he has to have it, when he's sleeping, when he's not feeling well, etc. If he's playing, I try to give him some room.

Milo was losing weight there for a while. He's not gaining on a grand scale, but he did gain some back, so hooray! They measured him with his very wet diaper and his clothes, but I still think that he's gained a tiny bit.

I feel like there's something else, but I'm already exhausted this morning! All in all, not so bad news, right? Yay for the MRI, boo for oxygen, yay for weight!
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  #2  
May 22nd, 2009, 07:49 AM
Daisyfields's Avatar Platinum Super Mega Mommy
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So exciting, glad the doc go you the apt for Tuesday. I know your nervous but try to not get too nervous until they give you reasons to be.

Sorry about the constant oxygen, that's got to be hard. I wish I could say that I relate but I don't. Sorry

Milo's weight gain is fantastic. If he wants some extra, I'd be happy to donate some from my body. (hope my sarcasm makes you laugh)... in all honesty, that's great news for him.

KUP
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  #3  
May 22nd, 2009, 08:07 AM
quietsong's Avatar Just Another Slacker Mom
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The constant oxygen has to be a pain, but otherwise I agree, a pretty good update! I'm glad they were able to get you in so soon for the MRI, you definitely deserve a speedy turn around at this point!
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  #4  
May 22nd, 2009, 08:54 AM
Ditzzy's Avatar Stupid Lamb;)
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Great update!! How much O2 is he requiring?
I'm so glad his MRI is Tuesday!!
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  #5  
May 22nd, 2009, 09:10 AM
iamkc's Avatar Platinum Supermommy
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He's on 2L, standard. When he eats, sometimes even 5L doesn't keep his sats up. (We know that sats drop when they eat, but they shouldn't go down THAT far!)

Now I'm fighting the urge to call the doc to make sure that the MRI is THIS Tuesday. Well, even if it's not, I'll be excited-it's still way better than June 24th!

For weight, we're just thrilled when he gains anything at all. I know that the growth hormone isn't helping him grow yet (not til age 2), but I think that it's helping his muscle mass a little bit, which could be contributing to his weight gain. Being on oxygen, he doesn't have to burn so many calories breathing. And the fundoplication has kept him from vomiting, so that definitely helps! Overall, we're pleased with his weight gain now!

Now just to figure out WHY he's having these problems...
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  #6  
May 22nd, 2009, 11:54 AM
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-knew this, but will say the same thing.

YAY @ you standing up for him and getting things done more quickly
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  #7  
May 22nd, 2009, 12:28 PM
iamkc's Avatar Platinum Supermommy
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LOL-thanks! It helps when the ped actually gives a...OMG, I just realized that I can't think of an acceptable word here! HAHAHA Oh, when she gives a hoot/darn/care.
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  #8  
May 22nd, 2009, 12:57 PM
Tara0906's Avatar Mega Super Mommy
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Thats great you got it moved up!!!!
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  #9  
May 22nd, 2009, 04:26 PM
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@ not being able to find an appropriate word
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