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Milo will have to have GA for his MRI. The ped finally got through to them yesterday and we have an appointment for Tuesday! They only do it on Tuesday and Thursday with GA, so YAY! At least, we're assuming it's this coming Tuesday...I can't imagine that it would be the following one. Now I'm all nervous wondering!
Because of the problems that Milo has been having, we're keeping him on oxygen pretty much all through the day. If he seems to be doing well, I give him a break. I keep his monitor on, though. When he's eating, he has to have it, when he's sleeping, when he's not feeling well, etc. If he's playing, I try to give him some room.
Milo was losing weight there for a while. He's not gaining on a grand scale, but he did gain some back, so hooray! They measured him with his very wet diaper and his clothes, but I still think that he's gained a tiny bit.
I feel like there's something else, but I'm already exhausted this morning! All in all, not so bad news, right? Yay for the MRI, boo for oxygen, yay for weight!
He's on 2L, standard. When he eats, sometimes even 5L doesn't keep his sats up. (We know that sats drop when they eat, but they shouldn't go down THAT far!)
Now I'm fighting the urge to call the doc to make sure that the MRI is THIS Tuesday. Well, even if it's not, I'll be excited-it's still way better than June 24th!
For weight, we're just thrilled when he gains anything at all. I know that the growth hormone isn't helping him grow yet (not til age 2), but I think that it's helping his muscle mass a little bit, which could be contributing to his weight gain. Being on oxygen, he doesn't have to burn so many calories breathing. And the fundoplication has kept him from vomiting, so that definitely helps! Overall, we're pleased with his weight gain now!
Now just to figure out WHY he's having these problems...