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Update for Jess and Milo


Forum: Children with Special Needs

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  #1  
June 2nd, 2009, 01:41 PM
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The sleep study went "okay" They are keeping him overnight again tonight. he didnt sleep well but no o2 was needed, but no one is trusting that reading. They are checking the home equipment just to be sure, but arent taking chances so they will do it again tonight.

Now to the MRI, the pulmonolgist was waiting for the radiologist to re read it, but there are 2 "markers"but they arent sure what they are yet. waiting for more confirmation.

i will keep you all updated as she updates me. keep them both in your thoughts, they will need it
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  #2  
June 2nd, 2009, 02:10 PM
stacyp's Avatar Mommy to Andrew & Luke
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Thanks for keeping us updated. They are in my thoughts & prayers.
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  #3  
June 2nd, 2009, 04:26 PM
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another update

They are still waiting for more definate results from a different doc, jess said she thinks the pulmonologist didnt know all the answers, isnt sure whether or not they will get more info tonight or have to wait til after they get home.

as of right now, they can see extra fluid, but not enough to explain head size, underdeveloped brain matter both of which could be part of the rss, a couple of other "strange" areas, not sure what they are. and what looks to be a cyst on the pituatary gland, not sure how that affects things. cant determine if he has cranio as of now.

so there is definately stuff going on, but they are waiting for more concrete answers
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  #4  
June 2nd, 2009, 05:52 PM
Ditzzy's Avatar Stupid Lamb;)
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Thank you so much for updating!! I'm thinking of them!
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  #5  
June 3rd, 2009, 04:22 AM
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Thank you for updating, keeping them in my thoughts and prayers!
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  #6  
June 3rd, 2009, 07:19 AM
quietsong's Avatar Just Another Slacker Mom
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What an ordeal they are going through! Thanks so much for the updates, I'm thinking of them.
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