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Forum: Children with Special Needs

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  #1  
October 15th, 2009, 03:27 PM
docsmomma's Avatar Platinum Supermommy
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We are back from clinic today.

Labs (which are done through a simple fingerprick and Joey did not cry at all) are good, for the most part. His WBC and ANC are UP, his platelets are "good", but his hemoglobin is low so he goes tomorrow for a transfusion.

Today will probably be the last day we have to give him the Neupogen shot this round. Tomorrow they will run labs one more time to be sure.

Scan results.........

They have not compared to previous scans yet... HOWEVER it appears to be inproved. There is no mention of the mediastinal mass that I can see, but I could be wrong. There are still nodules on the lungs, however it also seems improved from previous reports. Old reports always said "numerous nodules" and gave sizes of bigger ones. This report said "a few tiny nodules". So far it does sound better. However it also mentioned "mild intrahepatic biliary dialation". So I need to find out what that means.

So still lots of questions, still active disease HOWEVER it is improved from the looks of it. And it also looks like his liver may be clear of active disease.

I will post more on the scans when we know more. For now, we will be grateful for improvement and trust God to heal Joey fully.
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  #2  
October 15th, 2009, 05:34 PM
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Thank God for improvement! That's great, Traci!
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  #3  
October 19th, 2009, 07:57 AM
Daisyfields's Avatar Platinum Super Mega Mommy
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That's great news. Thank you for the updates. I was wondering how Joey was doing.

HUGS
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  #4  
October 19th, 2009, 05:16 PM
docsmomma's Avatar Platinum Supermommy
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Thanks ladies. i wish it was all good news. Right now we are having to determine how much liver damage there is and if it is reversible.

I should know more in the next 2 days, and even more in the next few weeks.
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  #5  
October 23rd, 2009, 08:06 PM
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Crossing my fingers for more good news. So far, Joey is proving them wrong. Here's hoping that he continues to amaze!
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  #6  
October 23rd, 2009, 09:31 PM
~~~Sara~~~'s Avatar Platinum Supermommy
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Well I hope you get some good news, you and Joey deserve it.

I think of you often!

I read the mild intrahepatic biliary dialation has something to do with the gallbladder, but does not sound bad.

Thanks for the update.
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  #7  
October 23rd, 2009, 10:01 PM
docsmomma's Avatar Platinum Supermommy
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Quote:
Originally Posted by ~~~Sara~~~ View Post
Well I hope you get some good news, you and Joey deserve it.

I think of you often!

I read the mild intrahepatic biliary dialation has something to do with the gallbladder, but does not sound bad.

Thanks for the update.
IHBD is a condition where something is blocking the bile ducts, which can cause damage to the portal vein if not fixed. They did not see any signs of something blocking the bile ducts so they are seeing if previous scans showed this issue, and if so it could be attributed to the disease in his liver.
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  #8  
October 24th, 2009, 07:47 AM
~~~Sara~~~'s Avatar Platinum Supermommy
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You guys deserve some good news, I hope it's not serious!
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  #9  
October 24th, 2009, 08:41 AM
Daisyfields's Avatar Platinum Super Mega Mommy
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Great to hear these updates Traci.

Glad the labs aren't too hard on Joey, finger pricks are better (JMHO). Sorry about him needing the transfusion, how does he feel about that? Does he understand? How are you?

Glad to hear that the scans show that it's better. I hope the numerous nodules means a good thing, and nothing worrisome. Gosh, I worry so much for you guys. I don't know how you do it Traci, you are such a strong mommy, you need a reward & a serious day for YOU. I am praying for you all.

KUP okay?

HUGS
Chantelle
Scan results.........
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