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Cooper's seeing his new Neurologist at Children's this morning. She has all medical documents this time around & the major blood work that was ordered when Cooper had an episode. I hope we have some answers, if not, I guess we'll have to see what happens or what route this doc wants to go too w/ him.
I get there & she starts asking for documents. Documents that I brought w/ me at the meeting that we initially had. She said "that's a bible of documents"... she added that she didn't have time to go through it all now & even though I had signed release forms from all of Cooper's doctors previously so that she "would" have access to my "bible" she didn't have them.
She actually said again... "I don't have the assessments from his OT/PT & Speech therapists"... she added how she didn't have this & that... I stopped her & said "you know what? the first meeting we had, you didn't have anything, even though I made sure that everything was set up & released. Now I am here for a second time & you claim once again you have nothing? I don't understand what the problem is but this is a waste of our time if you don't have any documents or haven't done any research on him"... She said "well, I would appreciate if you could contact ____ & get me these documents"...
I just snapped. I was like "you know what? I've done EVERYTHING, and this has NEVER happened before, same hospital, same child, all the other specialists have his information w/ out error yet you have nothing?"
Long story short, she put him on a medication b/c she believes that his seizures that last anywhere from 24 hours to a few days, is a migraine & nothing else. I do not believe her, I KNOW, in my heart, that there's something else wrong. And it's not b/c I want him to have something wrong, but I can tell, and it's in my instinct. My instinct has never brought me to a wrong direction in the past but for some reason, I am forced to insist that she's out of her rocker. I told her over & over again "can you please speak up? I have hearing loss & I'm having a hard time understanding you.
I'm about to have major surgery on Monday (this upcoming)... so until I can get another referral to another Neurologist, I'll have to wait but I am done w/ this one. I really don't feel like she cares much & her attitude was basically "next"... (like in line to see the next patient).
TY, I still feel annoyed when I think about this. One of her comments was "he has to go to school eventually"... I felt like saying "since when does a doctor tell a patient that they have to go to school? I mean, what if I was homeschooling my kids (I'm not but if it came down to Cooper's medical needs being met ONLY if he was homeschooled, that's what I'd do, if I had too, what ever it takes for my kid's health). My 9 & 12 year old are in public schools & I have never tried to keep my kids home. Hello? I want my kids to go school, I need that break, believe me. So her comment/suggestion on me bringing my kid to school, NONE OF HER BUSINESS. Then to act like "next" & say she has no documents, what's w/ that? I mean, really?
Now I'm about to have surgery (Monday) & I can't start calling all the therapists & get all these papers released (for the 3rd time) b/c she has this issue w/ not getting the papers? I am so sorry, but I do NOT believe her at all. I think she's lying, I think she has the documents but doesn't know where they are OR there are so many documents that she is overwhelmed w/ the whole thing. I "could" understand the lack of documents the 1st time, but that STILL wouldn't have been a reason b/c I brought the documents w/ me on top of giving the releases, so not only were they in front of her, they were there for her to see, in black & white. Why would I waste my time like that? Why would I drive an hour, one way, take my kids into a hospital & waste my money & time for nothing? Who would do that? I have to see enough therapists & specialists that the last thing I have is extra time. KWIM?
I guess this "issue" will have to wait until I am recovered & able to pick-up where I left off last week. Until then, still...no answers.