Log In Sign Up

SSI question


Forum: Children with Special Needs

Notices

Welcome to the JustMommies Message Boards.

We pride ourselves on having the friendliest and most welcoming forums for moms and moms to be! Please take a moment and register for free so you can be a part of our growing community of mothers. If you have any problems registering please drop an email to boards@justmommies.com.

Our community is moderated by our moderation team so you won't see spam or offensive messages posted on our forums. Each of our message boards is hosted by JustMommies hosts, whose names are listed at the top each board. We hope you find our message boards friendly, helpful, and fun to be on!

Reply Post New Topic
  Subscribe To Children with Special Needs LinkBack Topic Tools Search this Topic Display Modes
  #1  
December 3rd, 2009, 06:13 AM
bizziebeemommy's Avatar Veteran
Join Date: Jul 2006
Location: Texas
Posts: 266
Hey ladies! I have a question for ya..... I have tried applying my son for SSI 2 times since he was born. (he is 3) He DOES qualify for SSI but not until he is 18, b/c we are over the 'financial limit' as far as income goes. KEEP in mind... we only have ONE income (I am a SAHM) and we also have joint custody and pay child support for my three bonus kids. (we have FIVE kids total)
Im not one to ask for handouts, but if he was able to get any financial assistance, it would help pay for his therapy, vitamins/meds/copays and glasses. (and gas taking him back and forth to Houston which is 2 hrs away) He has also been denied for Medicaid as a secondary insurance. This is all very upsetting for me.. .. I have been thru every loop hole, and have tried everything, accept for flat out lying. I have heard that in other states it does not matter what your income is, but we are in Texas, where apparently it does matter. If anyone knows something I dont.. pls let me know... TIA
Also... now that he has been diagnosed w/ Autism as well, would that make any difference?
__________________
http://cherphotos.webs.com/





Reply With Quote
  #2  
December 4th, 2009, 05:35 PM
Ditzzy's Avatar Stupid Lamb;)
Join Date: Sep 2007
Location: OH-IO
Posts: 9,023
Send a message via Yahoo to Ditzzy
I wish I knew more about SSI so I could help you. I'm sorry I can't help. I've thought about applying for Ava, but we make too much and own a business so we'd get denied.

((Hugs))
__________________




Thank you, tasha_mae, for my siggy!
Reply With Quote
  #3  
December 5th, 2009, 07:04 PM
Platinum Supermommy
Join Date: Mar 2005
Posts: 8,671
Layne gets SSI but I'm not sure what else you could do about the financial aspect of either. I know we had to file an appeal to get it finally and it took almost 3 years to get it.

The only thing I can suggest is to file for an appeal hearing where you can go in front of a committee to plead your case, including the extra children. I'm so sorry its all so difficult.



and hope,

I would go ahead and apply for ssi for ava, the process takes a long time and if, god forbid, something happened with your income it can be nice to have it to fall back on
__________________





My Blog
http://howdyinc.com/mrshowdy/

Last edited by mrshowdy; December 5th, 2009 at 07:06 PM. Reason: forgot to add
Reply With Quote
  #4  
December 5th, 2009, 09:20 PM
stacyp's Avatar Mommy to Andrew & Luke
Join Date: Nov 2005
Location: OHIO
Posts: 17,229
We are in the same boat. BUt, due to Luke's diagnosis, he's on a waiting list for a secondary medical card. There are only so many slots available each year is what I'm told (for Ohio)

States vary. Pennsylvania is excellent with the medical card requirements which I think is how it should be. I know this because our specialists are in Pittsburgh & they keep telling us to move there. It's very expensive even with insurance anymore.

Good luck.
__________________



Thanks Yvonne (Jaidynsmum) for my beautiful siggy!














Reply With Quote
  #5  
January 12th, 2010, 04:23 PM
Mega Super Mommy
Join Date: Jun 2008
Posts: 3,492
I am on the autism board but I have to agree that PA has amazing Medical Card assistance. Nathan receives 30 hours a week of behavior therapy, 1.5 OT and 1 hr of speech each week and we don't pay anything - it is all covered. All of his prescriptions are also covered as well as any copays. Basically our primary insurance starts in and whatever they don't cover his MA card picks up. I wish it was like that everywhere for everyone who has a special needs child.

I don't know anything about SSI - sorry
__________________


[/COLOR]Nathan(6), Reagan(6), Riley(5), Kaycee(3)

Our Blog





Reply With Quote
  #6  
January 12th, 2010, 10:12 PM
docsmomma's Avatar Platinum Supermommy
Join Date: Apr 2005
Location: Anaheim, CA
Posts: 7,096
Send a message via AIM to docsmomma
honestly, get an attorney. Thats what my mom had to do for my sister. SSI responds much better to attorneys, and many will work for you with an agreement to recieve a percentage of the award (retroactive to date of application)
Reply With Quote
  #7  
January 13th, 2010, 08:13 AM
iamkc's Avatar Platinum Supermommy
Join Date: Aug 2005
Location: Montana
Posts: 8,137
Send a message via AIM to iamkc
Is this Medical Card something they have in every state? DH is having job issues, and we're trying to figure out what would happen if Milo had to be dropped from Medicaid, for whatever reason.

SSI-Ugh. We've applied several times (Milo DEFINITELY qualifies!), but they keep "not getting the records" each time. I feel like they're trying to blow us off.

ETA: Is the Medical Card the same thing as Medicaid? I'm finding info for it in PA, but not many other places...might need to move to PA. LOL

Last edited by iamkc; January 13th, 2010 at 08:16 AM.
Reply With Quote
  #8  
January 13th, 2010, 10:30 PM
docsmomma's Avatar Platinum Supermommy
Join Date: Apr 2005
Location: Anaheim, CA
Posts: 7,096
Send a message via AIM to docsmomma
Every state is required by federal law to have a program for children with certain qualifying illnesses. In California it's called CCS. But these programs have income guidelines as well, with some exceptions. Here in CA it's $40,000 or less or if out of pocket expenses exceed more that 20% of families adjusted gross income or has any of the state insurance programs or has a qualifying condition for their medical Therapy program
Reply With Quote
  #9  
January 15th, 2010, 12:23 PM
Mega Super Mommy
Join Date: Jun 2008
Posts: 3,492
In PA there is no income guideline. Just talking to one of my son's therapists today about stuff and she said one of her other clients moved to PA specifically because of the medical card and all the help that comes with it.

My oldest daughter had a medical card through all of 2009 for a speech delay/disorder. We got all of her outside speech therapy covered and any pedi appointments, well baby checks, prescriptions were all covered also with no copay. She won't qualify this year since she tested out of speech therapy.

I hope nobody is offended, I just wanted to let folks know that PA has some great stuff for special needs. Even if it is something to put in the back of your mind. You never know where a job may take you or where you may apply for a new job (kwim?)

Carry
__________________


[/COLOR]Nathan(6), Reagan(6), Riley(5), Kaycee(3)

Our Blog





Reply With Quote
  #10  
January 17th, 2010, 06:38 PM
*Lindsay*'s Avatar Platinum Supermommy
Join Date: Apr 2006
Location: Virginia
Posts: 12,516
Check to see if your state has waiver programs. They waive the family requirements looking at the child's income, which is nothing and qualifies them for medicaid. This will not happen for SSI. For us, medicaid is BY FAR more beneficial than SSI would be. She won't get that until she is 18.
__________________
Reply With Quote
  #11  
January 18th, 2010, 08:16 AM
Daisyfields's Avatar Platinum Super Mega Mommy
Join Date: Apr 2007
Location: In the enchanted forest
Posts: 5,257
I can only speak from personal experience. My DS who is also SN's, receives Mass Health for Insurance..BUT..we have to pay the state $184.00 a month for this. Now, some people might wonder "why" we'd pay for a state insurance rather than just use my DH's private insurance that we pay for through his job/check. My DS has A LOT of apt's, like 3-4 a week "and" takes medications, so in the end, instead of the $40.00 co-payments for the doc visits & the Rx costs, which are now free too, we pay $184.00 even to the state b/c as it's already been mentioned below, it goes by how much you make as a whole. I too am a SAHM, my DH's works & he pays CS, but...that doesn't matter. According to the state, you have to be REALLY poor, I mean, so poor that you are not living in a house practically. Because we have a bunch of bills means nothing to the state. SSI would be for assistance but have you applied for him to have SSDI? Two different things. You can also "appeal" the verdict of not being accepted & give your reasons why. My suggestion would be (as I had to do) get all the medical documents together, I had letters that were written by my DS' doc's & specialists, then I had written my own letter to explain my situation & my DS' needs. Long story short, we don't get the Medicaid for free, we have a monthly deductible to pay, but it makes more sense for us to pay $184.00 b/c if we just used my DH's insurance, we'd be paying all that out & then some. All medical expenses are tax deductible, so hang on to your receipts, and make a spreadsheet (if you haven't already) of when your child goes to the doctor's, how much you paid, the distance, yes, you get paid for travel as well... Like right now I have all my documents together & we submit our forms for tax deductions.

I wish I had better answers but my only advice other than keeping everything on a spreadsheet & note all the apts, costs, etc., but just appeal the decision. It's tedious & it's painful (emotionally) to go through it, but I had to deal w/ it, still do, they re-evaluate my case every July & I am sure that our premiums will go up. The state I live in change their standards of how much money is considered "poor" w/ out cost to us. It's the way the economy is now. Stinks but it's better than nothing.

In my personal experience w/ this entire paper trail, I can say that persistence, not giving up, appealing is the way to go. Is it a pain? Yes. But I can promise you this, everything we have for DS' medical is b/c of my appeals. NOTHING, and I mean NOTHING, has ever been granted to us/him w/ the first application. Seriously. The squeaky wheel does get the oil, in a positive way though. Don't give up, and be persistent. Ask for their supervisors, ask for the appeals dpt. Don't just let them say "no" and give up, had I done that, we'd have NO assistance. It's been my persistent attitude that has kept us afloat in this area. Be the squeaky wheel.

I'd appeal ASAP, and go from there. Have you applied for Premium assistance through your commonwealth? This is a different avenue than Medicaid. You contact the department of treasurer through your state & ask for the Premium Assistance application(s) & it's very easy to do. You might be eligible for something, even $100 a month would be better than nothing. Just a thought.
If you have more questions, feel free to PM me.

HIH, GL
__________________




Last edited by Daisyfields; January 18th, 2010 at 08:21 AM.
Reply With Quote
  #12  
January 23rd, 2010, 06:43 AM
bizziebeemommy's Avatar Veteran
Join Date: Jul 2006
Location: Texas
Posts: 266
thanks ladies for all of your response's. We also have been denied for Medicaid (to use as a secondary for HIM only). We have applied for it 2 or 3 times. I think it is ridiculous that my husband would have to quit his job, to get any sort of assistance for my son. It's a sad thing to see so many people who abuse government assistance, and people who really need it, cannot get it.
__________________
http://cherphotos.webs.com/





Reply With Quote
  #13  
January 24th, 2010, 01:59 PM
Platinum Supermommy
Join Date: Oct 2005
Posts: 41,401
Send a message via Yahoo to nvr.4.gtn
lurking over here. I am in Texas and this is what I was told. Our ECI person told me to put my dd on The medically dependant childrens list. GThen after that call and tell them I want the "monies follow the persons program" We denied this as when I called they wanted me to put my dd in a nursing home for a 24 hour stay. lol We are not in that much need for help so we denied, but if you really need the money, what this does is automatically puts the child on emergency medicaid based on their income not yours! Theirs is nothing so easy! Then it gives money monthly (not sure how much) that can be used for whatever the child needs, gas for the car to therapy, glasses, medcications, and so on. If you really need the help this might be the way to go.
You do have to pay for the 24 hour nursing home stay though and I have no clue what that would run. You are allowed to stay with the child as well. Just thought 'd tell ya
__________________

Made by Trish!!!! <3<3<3

Reply With Quote
  #14  
January 31st, 2010, 06:39 AM
bizziebeemommy's Avatar Veteran
Join Date: Jul 2006
Location: Texas
Posts: 266
hey.. yes... I have heard of that.. the list is years long (so I hear) and I agree w/ you... not to sure about the nursing home thing.
__________________
http://cherphotos.webs.com/





Reply With Quote
  #15  
January 31st, 2010, 01:27 PM
Platinum Supermommy
Join Date: Oct 2005
Posts: 41,401
Send a message via Yahoo to nvr.4.gtn
yae, tehy told me 4-6 years. My friends dd has been on it since she was 7 months old and she is 4 in Oct. and still on it. lol

I talked to the idiot (sorry mad at them) ECI guy on wed. and he said he never hear d of it working that way, that its 21 hours and its not a nursing home but a rehab place, we can leave as we want but have to come back to be checked. I told him I wasn't interested in that but whatever. He just kept saying it would give me money to pay people to watch her. I was like I don't need someone to watch her!
__________________

Made by Trish!!!! <3<3<3

Reply With Quote
  #16  
February 15th, 2010, 05:01 PM
fiefer87's Avatar Mega Super Mommy
Join Date: Aug 2007
Location: Near Buffalo, NY
Posts: 4,336
I just wanted to put this out there as its sort of been mentioned. There is a waiver program for the Medicaid. I originally tried applying for it on my own for my dd and got denied multiple times. Fast forward 5 years, we now have medicaid for my dd and our family income has only increased. What you need to do is investigate the different agencies that serve special needs community members or children with disabilities. The place we use in my state is called People Inc. One of the main services these places provide is case management, and this includes Medicaid waiver applications (getting Medicaid for the child without concern for parental income). These places also look for other resources that would be beneficial for your family. I would definately suggest looking into agencies like this in your state as without them, we would have never gotten my dd her medicaid. Also, my dd has autism as well and that really helped tip the scales in having her get her medicaid
__________________
<div align="center">Thanks Alison's Mommy, SillyMama, Katarina and samylaine for my blinkies.</div>
Reply With Quote
  #17  
February 20th, 2010, 09:07 AM
Platinum Supermommy
Join Date: Oct 2005
Posts: 41,401
Send a message via Yahoo to nvr.4.gtn
we tried that, but the only one we could find here was to put her in the nursing home first. I wasn't going to do that. lol
__________________

Made by Trish!!!! <3<3<3

Reply With Quote
  #18  
March 12th, 2010, 04:03 PM
Newbie
Join Date: Mar 2010
Posts: 7
I feel your pain. We qualify in Georgia for SSI based on Steven's diagnosis & income.
We are disqualified because I have an IRA that is not with a company. This is a retirement account that was rolled over from a 401K when I worked - now I am a SAHM. They told me that if it was in a 401K with a company it would pass, but not now since it is in an IRA. I would have to cash it out with the tax penalties and then we could get benefits. What a messed up system it is.
Reply With Quote
  #19  
March 13th, 2010, 10:01 AM
Platinum Supermommy
Join Date: Oct 2005
Posts: 41,401
Send a message via Yahoo to nvr.4.gtn
that is messed up!

but I get it, when I was pregnant with my first kid, we had no insurance. I had to quit my job early to get on medicaid. I couldn't afford to pay the medical bills. Even if I worked full time till she was born and that money went ONLY to medical we still couldn't have paid for it, so I had to quit to qualify.
__________________

Made by Trish!!!! <3<3<3

Reply With Quote
Reply

Topic Tools Search this Topic
Search this Topic:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off



All times are GMT -7. The time now is 05:21 PM.



Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2014, vBulletin Solutions, Inc.
Search Engine Optimization by vBSEO 3.6.0