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  #1  
February 6th, 2010, 06:16 PM
docsmomma's Avatar Platinum Supermommy
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I was on the Queen Mary today and Amy Roloff from Little People Big World was there. I got an amazing opportunity to speak with her and ended up telling her about Joey and his story. She wants me to send her an email with his story, updates, and info on his disease!
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  #2  
February 6th, 2010, 08:02 PM
Ditzzy's Avatar Stupid Lamb;)
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How awesome is that! Love it!
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  #3  
February 7th, 2010, 02:34 PM
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very cool
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  #4  
February 18th, 2010, 08:50 PM
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that is awesome!

I just read Joey's story. Very touching and heart breaking. I was lurking and seeing if there was a place where my niece fit in. She has Hirchsprung's Disease.
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  #5  
February 19th, 2010, 10:23 PM
docsmomma's Avatar Platinum Supermommy
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Quote:
Originally Posted by Jodi Dawn View Post
that is awesome!

I just read Joey's story. Very touching and heart breaking. I was lurking and seeing if there was a place where my niece fit in. She has Hirchsprung's Disease.
Thank you. We are so grateful for where Joey is today. Please feel free to post here. As near as I can see Hirchsprung's Disease is considered rare, so I wanted to also let you know about Rare Disease Day US

February 28 is World Rare Disease day. 24 states have signed proclamations recognizing this day, and many families I know plan to do a balloon release on this day as well.
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  #6  
February 20th, 2010, 08:47 PM
bizziebeemommy's Avatar Veteran
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that is awesome.. I love the Roloff's.
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