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new...anyone have a trach baby?


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  #1  
February 25th, 2010, 09:17 PM
babybatax2's Avatar Platinum Supermommy
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Hey! I am just looking around for anyone else that may have a trach child.

I have twin daughters, that were born at 31 weeks. Rylan was trached on 1/8 due to subglottic stenosis. Just wondering if anyone else had similar issues
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  #2  
February 26th, 2010, 03:05 PM
Ditzzy's Avatar Stupid Lamb;)
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Hi and welcome to the SN board
My DD had her first stage of airway reconstruction last September to prevent a trach. She has severe laryngomalacia, tracheomalacia and mild subglottic stenosis. She's on 1L-2L of O2 and we're biding our time before she has more airway surgery.

Have you thought of LTP in a year or so? I'm sure that's an option later for your baby is she doesn't outgrow it on her own. Ava had a tweaked version of this and supraglottoplasty.

Is your DD on a vent? *hugs*
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  #3  
February 27th, 2010, 07:11 AM
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  #4  
March 3rd, 2010, 07:31 AM
babybatax2's Avatar Platinum Supermommy
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Quote:
Originally Posted by Ditzzy View Post
Hi and welcome to the SN board
My DD had her first stage of airway reconstruction last September to prevent a trach. She has severe laryngomalacia, tracheomalacia and mild subglottic stenosis. She's on 1L-2L of O2 and we're biding our time before she has more airway surgery.

Have you thought of LTP in a year or so? I'm sure that's an option later for your baby is she doesn't outgrow it on her own. Ava had a tweaked version of this and supraglottoplasty.

Is your DD on a vent? *hugs*
It is strange to read your post and know exactly what you are talking about I have to "dumb it down" when I talk to people...anyway.....

Rylan has tracheomalacia and severe subglottic stenosis, she is a level 3, 90% of her airway is closed. She was on the nasal cannula prior to being trached and was at 3L of O2. She is still on a vent, but on really low settings. I have to look into the LTP. Basically we are waiting for her to grow to do reconstructive surgery using her rib cartilage. She may also outgrow it though to.
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  #5  
March 3rd, 2010, 09:21 AM
Ditzzy's Avatar Stupid Lamb;)
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It is terrible to watch your child struggle to breathe, isn't it? The stridor can get so scary.
An LTP is reconstruction and they can use rib cartlidge. If this last airway surgery Ava had doesn't work, she'll have the rib grafting done.

I hope Rylan outgrows it on her own. Is she home with nursing or still in the hospital? She's adorable!
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  #6  
March 8th, 2010, 08:35 PM
babybatax2's Avatar Platinum Supermommy
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Rylan is still at the hospital. She is getting there slowly but surely
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