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Forum: Children with Special Needs

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  #1  
March 3rd, 2010, 07:08 PM
quietsong's Avatar Just Another Slacker Mom
Join Date: Aug 2006
Location: Missouri
Posts: 42,367
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I'm glad you've come over to join us! I'm so glad to hear that Asher is happy - that is such a huge factor, and so meaningful. I'm sorry to hear of his delays, and I hate that he was chosen to carry the burden of something so rare, but I know he is a lucky little guy to have you as a mom

I'm Kel; I know I introduced myself briefly on the welcome board. I'm 26 and mom of 2 boys. Eric is 3.5 and developmentally typical; Danny was born a month early on March 11, 2008, with congenital CMV. It nearly killed him, and he was born very sick, spending 2 months in the NICU undergoing a brand new treatment. We know that the CMV left calcification in his brain, and also enlarged his ventricles, leaving some scarring around them as well. So far, he has been very lucky, with mild delays, low muscle tone, a left side weakness (does not use his left hand for much of anything, his left eye drifts a little), and a profound hearing loss. He received cochlear implants at 11 months and is slowly learning to listen; he doesn't talk yet, but he is starting to have some reliable receptive language after a year of using his CIs.

As for pictures - which I would LOVE to see - you can post them...they just go into a queue and a moderator has to push them through. We're a little slower at that in the evening but it should usually only take a few hours at most.
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  #2  
March 3rd, 2010, 10:21 PM
wilkette's Avatar Member
Join Date: Jul 2009
Location: Clarksville, TN
Posts: 49
Thanks for the welcome! I managed to get a couple of pictures up in the intro thread on this board - looks like I've been overposting tonight.

That's great about Danny's receptive language! Asher's "neighbor" in the NICU had profound hearing loss as the result of gentamicin (they think), and he also ended up getting CIs. His mom and I still keep in touch on facebook. I know they have very intensive speech therapy for him and travel to a specialist at Vanderbilt weekly. Asher is in speech therapy for language and oral motor skills - he is 100% tube fed, so we are slowly trying to teach him how to eat. He ate an entire Gerber vegetable puff yesterday and I almost cried. It's nothing to most, but it's a huge step for him! He doesn't have any clear words yet, except for DaDa. We think his receptive language is finally kicking in as he's starting to (kind of) identify objects when asked.
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//Cayla//
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  #3  
March 4th, 2010, 08:10 AM
Ditzzy's Avatar Stupid Lamb;)
Join Date: Sep 2007
Location: OH-IO
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Welcome to the SN board! I also have one that doesn't eat (liquid diet). Fun times...

I'm glad you found us
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Last edited by Ditzzy; March 4th, 2010 at 08:35 AM.
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