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Forum: Children with Special Needs

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  #1  
March 23rd, 2010, 06:17 AM
quietsong's Avatar Just Another Slacker Mom
Join Date: Aug 2006
Location: Missouri
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How much of a support network do you have? Do your family and friends help at all, or do you find yourself more isolated because of your LO's special needs?
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  #2  
March 23rd, 2010, 08:38 AM
Platinum Supermommy
Join Date: Mar 2008
Location: Maryland
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I already mentioned it yesterday, but I'm pretty much alone. It got worse last night with my family saying I'm hurting him by looking for help. He'll be labeled for life and stripped of opportunities.
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  #3  
March 23rd, 2010, 10:06 AM
quietsong's Avatar Just Another Slacker Mom
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Ugh... Completely and totally false again! I just am so frustrated thinking about your situation, hon.

I've got an all right support network. My husband is wonderful, thank God, and our friends and family don't make a big deal out of anything. More than anything, though, most everyone just tends to pretend Danny is normal and fine, which is frustrating in whole other ways.
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  #4  
March 23rd, 2010, 02:13 PM
Effervescence's Avatar Platinum Supermommy
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Sometimes I feel isolated. I don't think that DH or his family (whom we live with) really understand all that is happening. His parents like to pretend that nothing at all is wrong with Jonah, and always tell me I oughtn't be taking him to all these doctors and therapies. They don't like that I'm going to the county for help ("don't you know they TAKE CHILDREN AWAY??" seriously... they believe the state is going to take my child because I enrolled him into EI) and they are extremely skeptical of doctors. They think Jonah is totally normal, and I'm being paranoid and giving the doctors our money for no reason.

DH is really good. At least he tries to be. He helps me with certain things, tries to get Jonah to walk more and be more independent etc. But he doesn't really realize how exhausting it is to take him to doctors all day long, and see him scream. He's so burnt out that if I even take him out to the van, he's crying before I get him into the car seat. DH doesn't realize that sometimes I just need an emotional break.
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