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this *bleepity bleep* cast!!!


Forum: Children with Special Needs

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  #1  
March 24th, 2010, 11:11 AM
Effervescence's Avatar Platinum Supermommy
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uuuugh! I am so frustrated with this! On Monday, Jonah had his feet and lower legs put in castings. When we got home, he managed to pull the one off of his right foot! Yesterday morning, Tuesday, I took him back to the office and they sawed the cast in half and showed me how to wrap it on with an ace bandage. I guess this is how they are going to have both feet next week, and then the week after that he will be back in full time casts, etc.

Well the thing won't stay on his foot. I put it on, very securely, and make sure his ankle and everything is set the way it should be, and not even five minutes later, his toes are up where his ankle should be. I think the casting is too wide at the top, and it lets his foot go to it's natural position (straight/pointed and turned in) I'm supposed to keep it on him 24/7 at this point, but for one thing it is so frustrating because he can't even crawl around for a few minutes without it coming off, and he cries every time I put it back on him. It's heartbreaking and exhausting. And also I don't want his foot to be in there wrong and have it cause more problems.

I don't want to take him back to get his foot recasted, I feel like I'm traumatizing him. Yesterday, when I took him out of the car, he took one look around at the parking garage and immediately knew we were at the hospital. He flipped out. But I think I have to take him to have it completely redone.

Does anyone have any experience with castings that won't stay on the child??? I'm really starting to get stressed over these, and so is Jonah, which I hate.
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  #2  
March 24th, 2010, 11:25 AM
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I have no idea on this, but I hope you can work something out. It must be so hard on both of you.
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  #3  
March 24th, 2010, 04:27 PM
Ditzzy's Avatar Stupid Lamb;)
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I wish I could help you. I'd ask them to cast him higher up his thigh with a bent knee. This should make it more difficult to pull off. Ava has been in a cast for over a month now and I can't wait until it comes off!

*hugs*
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  #4  
March 24th, 2010, 05:10 PM
quietsong's Avatar Just Another Slacker Mom
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Man, that just stinks!! I was thinking the same as Hope, see if they can cast it higher so it can't come off as easily.
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  #5  
March 24th, 2010, 07:18 PM
Effervescence's Avatar Platinum Supermommy
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I finally caved and called the nurse this late afternoon, right before the office closed. She wanted to make an appointment to have it recasted tomorrow at 4:00 but we have the PDD specialist coming to observe Jonah in his home routine.... and she's getting here at 4:00!

So she went and checked with the doctor, and he said not to "knock ourselves out" trying to keep the cast on him (I had to giggle, imagining a doctor using that phrase LOL) and to try to put it on him at night, and it will be okay until we go back in on Monday. I'm glad, to be honest. It's bad enough to have to go there once a week, but to have to keep taking him in just makes his anxiety even worse.

I'll ask them about casting it higher on Monday. Will that make it hard for him to walk? We're trying to get him to walk in these things.

I thought I'd be okay with this, but it's becoming the most stressful thing we've had to do so far. It's just breaking my heart
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  #6  
March 27th, 2010, 08:25 AM
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glad they are working with you
I would think all the way up would be hard to walk, I am not sure how the casts are done but if you break your ankle and they cast it it doesn't come off, so I think they are doing it wrong
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  #7  
March 27th, 2010, 10:42 AM
Effervescence's Avatar Platinum Supermommy
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Quote:
Originally Posted by nvr.4.gtn View Post
glad they are working with you
I would think all the way up would be hard to walk, I am not sure how the casts are done but if you break your ankle and they cast it it doesn't come off, so I think they are doing it wrong
That is exactly what I was thinking when they sawed it in half and told me to keep it on him using an ace bandage... if it didn't stay on him when the whole thing was solid, why would it stay on him this way? I really think the part that goes over the top of the foot is up too high. The part where his ankles and toes go in seems to be perfectly molded. My mom said maybe it didn't dry all the way and got pushed up after they did it (she is a nurse and has had to deal with casting patients for broken bones etc) I feel so bad because now his foot isn't getting fixed, which was the whole point of putting him through this! And this is the foot that the doctor said could probably be corrected in just two or three weeks' time, now it will take it longer.

I'm also thinking that they'll probably recast the right foot, and have it in the full time cast next week, while the other is in the part time cast. I was really hoping to be able to take the casts off him for the Easter holiday because he seems really uncomfy with them on, and gets overwhelmed easily. And (a very selfish reason) I was hoping to get some easter pictures of him in his little suit, which won't fit over the casts....

Oh well, we'll have to see what they say on Monday I guess
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