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Forum: Children with Special Needs

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  #1  
March 29th, 2010, 09:04 PM
Effervescence's Avatar Platinum Supermommy
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We woke up pretty early this morning to be at the orthopaedic surgeon by 8:45. That was probably the worst way to start off the week! We got there and didn't even have time to get situated or let Jonah get comfortable with his surroundings etc. I literally checked in at the front desk and the nurse was right there ready to take us back. I didn't even have time to get Jonah his comfort items (his blankie and pacifier) because as soon as I sat him on the table, she started the saw. Of course he was terrified and I had to hold him down while she cut the cast off his foot. That was awful. I hate having to hold him down like that.

She got the cast off his foot, and said he had a sore on the top of his foot. I looked at it, and it was pretty big but it wasn't something that I was going to freak out over either. I knew he hadn't been putting weight on that foot, and that is why. Well the doctor came in and asked the nurse if she'd seen the bottom of his heel. I looked at it, and OMG... I cried. I absolutely cried. His heel looks like it was attacked by an animal or something. It is bruised and raw. No wonder he was so intense all week. I had been reluctant to call them over his mood so many times, I called four times, and was debating calling a fifth time when he was just so miserable, but I thought it was his teeth. I felt so horrible. He wouldn't let the doctor touch his foot hardly, and I don't blame him.

Well the doctor said that it would make his condition worse to let it heal before putting a new cast on it, because of the way skin and muscle heal. So he put a dressing on the blisters, that had a disinfectant on it, and then he put padding around his foot. Then on top of that he put a plaster cast. Jonah's foot is SOOO big right now!! He also redid the right foot. We go back on Wed. to have them both sawed off again and check his heel, and then he will only need to wear them for part of the day.

Then we had another PDD evaluation. He's just so tricky to figure out. Parts of it, he reacted like a normal child would, and other parts I know are "red flags" for him. It was sooo hard for me not to jump in and encourage him to do what they were asking of him. Other parts were really cute and kind of made me laugh. The evaluator had this little duckie that blew bubbles when you squeeze it. And he was really determined that he was going to figure out how that thing made bubbles. It was just too darn cute seeing him try to dip it in the soap solution etc. But other parts made me want to cry. Like when she said "Jonah! Look!" and she just looked at a toy in the corner, he wouldn't follow her gaze. When she said it again and pointed, he wouldn't follow her pointing. He looked up for a second and then went back to the toy he was fixated on. They also finally saw how obsessed he is with sorting things and lining them up, particularly in groups of threes. I had tried to tell his therapists that he does this ALL the time, but he never did it while he was with them. They also saw how he becomes fixated on one thing.

I don't know. From what I understood after the evaluation was that the consensus remains the same- he doesn't have classic autism, but there is something going on that certainly seems related. Of course nothing is "official" until they make the report etc. They must think something is going on though, because they worked really hard to get us a date to see the specialist from Columbus. I don't think they would do that if they thought it was just a case of a paranoid mom. I'm happy to see this specialist, because they said even if Jonah isn't on the spectrum, the specialist will have ideas for how we can work with him etc. The date is May 17th. I'm going to be very very very pregnant at that time LOL

I also finally got in touch with the speech therapist, and we officially begin the first Wed. in April.
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  #2  
March 30th, 2010, 09:58 AM
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I'm glad you made some progress and start seeing the speech therapist soon. How horrible about his foot though! Is there anything you can do until they take the cast off again to make him more comfortable?
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  #3  
March 31st, 2010, 06:12 AM
quietsong's Avatar Just Another Slacker Mom
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Oh my gosh, hon!! I would be absolutely traumatized myself if I'd been treated like that to get a cast removed, let alone a kiddo Jonah's age. And that is heartbreaking about his heel

It sounds like things went fairly positively with the evaluation though. It sounds like Jonah and Danny are at about the same spot; he shows some red flags (like not following when I point) but other things are so NOT autistic with him that I just can't say. I'm glad you've got a date with the specialist, and hope your little girl stays put so you can make it.
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  #4  
March 31st, 2010, 10:49 AM
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poor kid!!!!!!!
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