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Is this typical?


Forum: Children with Special Needs

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  #1  
April 7th, 2010, 07:41 PM
Effervescence's Avatar Platinum Supermommy
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I am just wondering if this is normal. Jonah has two sets of therapists. One set is through EI, he has a speech pathologist, developmental specialist, and occupational therapist, plus a nurse (our EI coordinator) and the PDD specialist. These people see him both on an individual and group basis. They all see him once a week in the group EI therapy, and then kind of randomly individually and for evaluations.

Then we have a completely separate team at the Toledo Hospital: An ENT, orthopaedic surgeon, audiologist, speech therapist, occupational therapist, and we are adding another occupational therapist this month.

All of the therapists and doctors at the hospital work together very nicely. All of the therapists and specialists through EI work together nicely. But the two groups don't seem to work together at all. The EI group does ask what the hospital group is doing etc. The EI group thinks he has PDD NOS, but the people at the hospital say they feel that is way off and that we should try treating him more like he has apraxia. I wish the two groups would communicate an try to convene on his treatments (I am not sure if convene is the right word...)

Is it normal to have two separate teams? Sometimes it all seems excessive to me and I wonder if we might be overloading him.
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  #2  
April 7th, 2010, 07:47 PM
quietsong's Avatar Just Another Slacker Mom
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We technically have 2 teams, but we only see one regularly. Our EI team (PT, OT, and speech/language) we see all the time. We have a team that keeps up with us through the hospital (PT, OT, and neurology), but we only check in with them every 6 months or so. I couldn't imagine having to keep up with both teams!
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  #3  
April 7th, 2010, 07:52 PM
Effervescence's Avatar Platinum Supermommy
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we see all of these people at least once a week. We just stopped seeing the audiologist and ENT though, we have one more appointment with the ENT and the audiologist called me today and said she sees no need, but she'll be checking in on us.

It's just a crazy schedule, and I'm wondering if there's any way to "streamline" it. Not that I want to cut corners on my child's therapy, which he needs, but sometimes it seems counterproductive when there are two groups of people seeing him who don't communicate what they are doing
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  #4  
April 7th, 2010, 08:24 PM
quietsong's Avatar Just Another Slacker Mom
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I might talk to some people about reducing redundancies at least... If he needs 2 PT sessions a week, IMO, it would make more sense to see the same therapist so they know where he's at with things, you know?

ENT and audi, well, that's just my life so I can't say anything there, LOL. We're down to once every other month for audi, thank God... We were going every 2 weeks for the longest time, an hour one way drive
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  #5  
April 7th, 2010, 09:00 PM
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we just have one. But we have different "issues" then you do as well so not sure.
ECI (EI to some states) the ECI guy did occupational therapy but we are not doing therapy for that anymore so not he is just the coordinator I suppose. THen the mobility and vision educator work together and they are through the school system. They all come out together though. No one can see us alone except the vision educator though.

oh to add I agree about stream linging if you can. Thats why we got rid of ECI doing occupational since the mobility lady does that as well
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  #6  
April 7th, 2010, 10:21 PM
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Joey has is PT and OT, and then all the specialists - Neurology, Neurosurgeon, and Gastroenterologist (other issue that may/may not be connected to the hydrocephalus) and of course the pediatrician. The two groups don't really coordinate, the neuro just relies on me to communicate how the therapy is going and stuff.

I think you should definitly look into streamlining the groups - I can't imagine how stressful that must be!
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  #7  
April 8th, 2010, 09:39 AM
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Ava also has 2 sets and she sees both regularly. She sees private PT and OT (through Childrens Hospital) every Wednesday (PT) and Friday (OT). She sees EI every other week for PT and OT.

This does not include the bagillion specialists she sees.

Fun times....
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