We pride ourselves on having the friendliest
and most welcoming forums for moms and moms to be! Please take a moment
for free so you can be a part of our growing community of mothers.
If you have any problems registering please drop an email to email@example.com.
Our community is moderated by our moderation team so you won't see spam or offensive messages posted on our forums. Each of our message boards is hosted by JustMommies hosts, whose names are listed at the top each board. We hope you find our message boards friendly, helpful, and fun to be on!
Cooper was diagnosed w/ a mild case of tourettes syndrome not too long ago. He doesn't' do it a lot, it's a face tick, and he'll squint his eyes & jerk his shoulders like a shoulder shrug. He started doing it the past 2 days more often than before. I hate seeing him this way. I notice it b/c I see him all day, and I feel bad for him. I wonder if he wonders what's going on, like if he truly knows that he has a lot of medical problems or if he just doesn't know any better.
WDYT? Do you think your kids are aware or do you think this is all that they know?
I wonder this sometimes about Danny, how his hearing stops when he trips and falls, that sort of thing...but honestly, I think they don't know any better. This is norm to them, and they have no idea - at least at a young age - that they've got all these extra issues. Now, I'm sure as they grow up they'll start to notice how they're different, but that's a few years off, at least for me.
I mean what is so sad for me is how Cooper will actually get excited to go to a doctor's appointment, he doesn't mind the nurses, needles, blood or any tests he has to have. He's such a trooper. I wonder if it's b/c he has been having "procedures" and medical staff picking at him since he was 1 month old or if this is just his personality. He doesn't like everyone. He HATES the PT/OT & speech therapists at the school, he doesn't engage w/ them & doesn't hug them, unlike at the hospitals & it's not like we see the same nurses or assistants all the time, although, it;s the same environment, hospitals, rooms. I guess it's the norm. I feel badly that he's in the norm about this stuff.
I just feel like this is when I want to ask a higher power (you know what I mean, and I'm not super religious either), but "why him?" I am already older, I have more handicaps than I can speak in one phrase, I am in no need of a great body anymore. He's only 4, why him? Why not me? I can handle it all, KWIM? I hate this, watching him go through more than he should for a normal 4 year old healthy child. Makes me second guess my "faith" in certain aspects at times.
Not to be all spiritual, again, I don't want this to become anything HT, but you know what I mean.
I get exactly what you mean and have wondered the same things. When Danny was only a couple months old, we still had to do twice a week blood draws, and the poor thing is 3 and 4 months old and not even crying at it because it was so normal to him.
At the same time, as much as I wish I could take these burdens from him, I am thankful that he has them now - because kids are so much more resilient, able to put this stuff aside, and will never remember much of it, you know? As much as I've questioned my faith, I look at how everything has played out, and in retrospect can see a lot of "coincidences" that have gotten him where he is today. I may not understand why, but I try to keep in perspective that we CAN do this, and that we ARE gaining something from it: perspective, patience, and a greater appreciation.