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Im having a really bad day today. I got a call from my daughters special preschool about her OT and PT IEP. She is so below the curve she should still be a baby. I am so upset by this. I try so hard to hold it all together but I guess this is the last straw. I love her so much but I wonder if we will ever know what is going on with her or if she will ever be able to call me ma ma. Please tell me I am not the only one who feels like this.
Not sure how old your daughter is but I know the feeling. My son is considered one of the lowest functioning in his preschool class. Daniel is 4 and has just started calling me mama in the past few months. I know it isn't easy but try to keep your head up.
Today is better then yesterday. I think some days I just need a good cry to get it all out and then Im good for awhile. It is just hard when you live waiting for the other shoe to drop. What got me so upset is her PT score from what I can understand in on a z scoring system and it goes from 1.1 to -1.1 and she is -3.87 basically baby ratings. I know she is behind but hearing it sometimes is hard. Thanks for the well wishes and hugs I usually feel very alone in the world.
What got me so upset is her PT score from what I can understand in on a z scoring system and it goes from 1.1 to -1.1 and she is -3.87 basically baby ratings.
This is why I choose not to educate myself about those things. (and numbers just confuse me anyway) IMHO ignorance really is bliss in this case. You know your daughter better than any test. Maybe it doesn't work for everyone but it really helps me to stay positive if I forget about the scores and just focus on what Ellie can do and what we can do right now to make her life better.
oh honey I have no advise either, we have all had pity days, having one myself but I won't bother this thread with it.
I know from my friend who's daughter had sensory disorder and speech delay, they told her to NOT look at the scores until like a year later for that reason. I can also tell you that she was scored around 15 months when she was 3 years old. She didn't talk at all, no mama dada, not even the sounds, then at about 3 1/2 she started talking. Now at 5 she still has some quirks but you wouldn't know it. Her speech is not the greatest but she is understandable. There is always hopw
I'm with you!!! My daughter turned 3 and will only say "mama" when she's very hurt. Other than that no words. Does your daughter walk? Cause I HATE that about PT scores. They base EVERYTHING off their ability to walk. When Carrie took steps her pt score went from -3. something to 1.somthing. I think that's a MAJOR flaw in the PT eval. just they eval on "can they bend to pick something up while walking" etc so it's really not an accurate way to eval a child who doesn't walk.
I fall apart a lot too when faced with exactly how far behind Carrie is. If you ever wanna talk you can pm me!
Carrie is highest functioning in her class, but that is because the children in her class are immobile. When we move (in 8 weeks) and she's in her new class, she'll be by far the lowest functioning child.
The only thing that gets me through the pity party days is the hope. You have to remind yourself that there is always so much hope to be had and anything really is possible. (I'd go nuts if I didn't believe that!)
"Disability is not a brave struggle or ‘courage in the face of adversity.’ Disability is an art. It’s an ingenious way to live."
Last edited by C&K'sMama; March 6th, 2011 at 07:05 PM.
I totally feel you. My son is 4, and isnt sitting or walking or talking. It's really hard because I so want to hear him say mama. His therapists have told me that having this baby will be very therapeutic for him.