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I just saw the titles of the other recent posts. I almost have to laugh...almost.
I put Ellie to bed last night with a *slight* runny nose and then stupidly forgot to turn on the monitor. When I went to get her up this morning she was wheezing so bad I could hear it accross the hall!!! and she was burning up!!! 105!!!! I took her to the kitchen and she threw up and then started siezing!!!
So obviously now here we are at the hospital. She's already doing sooo much better than this morning but we can't go home until she's off oxygen and eating. So w'ere gonna be here a while. My guess would be Monday.
I'm trying to be grateful. We really don't have it so bad this time. The same can't be said for some of the other families here right now. And I have a wonderful husband who's taking care of everything at home. (and he brought me my laptop and a few other necessary comforts)
But you know what? (and I know I'm preachin' to the choir here) HOSPITALS JUST STINK!!!
What makes this all even worse is that we're missing Meagan's choir concert tonight. I was really looking forward to it. Do you ever feel like you're missing out on being a *normal* mom to your other kids??? How do you deal with it????
I just got back from the hospital too! Hospitals do suck!!
I know how you feel about missing being a "normal" mom. Even when I enroll Carrie in "normal" things (gymnastics, music etc) we are avoided.... I think no one is brave enough to walk up to me and say "so... what's up with your kid?" so I still don't get to be normal. I feel so guilty for Kate a lot of the time cause I know I don't dedicate as much time to just her as I do her sister (cause of therapies and such)... I"m really working on that.
"Disability is not a brave struggle or ‘courage in the face of adversity.’ Disability is an art. It’s an ingenious way to live."
poor baby! Hope she feels better.
We fortunatly do not have the trials that you guys have to endure. I guess when it comes to special needs, having a child with a severe visual impairment is on the "easy" side of the list