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appts this week?


Forum: Children with Special Needs

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  #1  
March 14th, 2011, 06:45 AM
Ditzzy's Avatar Stupid Lamb;)
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What's up this week? Any appts?

We have a slower week. Therapies on Wednesday. EKG, labs and Dr on Friday. That means 3 days with no appts!!

ETA: I totally forgot the IEP meeting tomorrow. I guess I blocked it out for as long as I could.
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Last edited by Ditzzy; March 14th, 2011 at 03:15 PM.
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  #2  
March 14th, 2011, 06:55 AM
breea's Avatar Mega Super Mommy
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Location: 46350
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We get to go to the University of Chicago Hospital tomorrow to see Breeanna's new Neurologist. A 2 hour drive for Breeanna isnt going to be fun. Going to ask him to do metabolic tests on her because I realized something this weekend, she never smells like a normal kid. I dont know how to explain it but about 2 hours after a bath she has this smell to her. It could be from her anti siezure meds but I believe she had it before she started siezing. Any thoughts?
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  #3  
March 14th, 2011, 03:17 PM
Ditzzy's Avatar Stupid Lamb;)
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Is she on levocarnitine by any chance? A side effect to that med is a funny smell. Ava is on it. Or could it be her urine that smells funny?
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  #4  
March 14th, 2011, 03:47 PM
breea's Avatar Mega Super Mommy
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Shes on Triliptal and its not the urine i can smell it mainly in her hair even shortly after a bath.

Here are the side effects:

Side Effects of Trileptal - for the Consumer
Trileptal
All medicines may cause side effects, but many people have no, or minor, side effects. Check with your doctor if any of these most COMMON side effects persist or become bothersome when using Trileptal:

Acne; constipation; dizziness; drowsiness; dry mouth; headache; indigestion; nausea; stomach pain; tiredness; trouble sleeping; unusual walk; vomiting.

Seek medical attention right away if any of these SEVERE side effects occur when using Trileptal:
Severe allergic reactions (rash; hives; itching; difficulty breathing or swallowing; tightness in the chest; swelling of the mouth, face, lips, or tongue; unusual hoarseness); blood in stool; chest pain; dark urine; decreased urination; difficulty speaking; double vision, changes in vision, or involuntary eye movement; dulled sense of touch; fever, chills, or sore throat; joint or muscle pain or swelling; loss of coordination; new or worsening mental or mood changes (eg, depression, agitation, anxiety, panic attacks, aggressiveness, impulsiveness, behavior changes, suicidal thoughts or actions); new or worsening seizures; nosebleed; red, swollen, blistered, or peeling skin; shortness of breath; severe or persistent stomach pain; swollen lymph nodes; symptoms of low sodium levels (nausea; general body discomfort; headache; lack of energy; confusion; decreased consciousness; increased frequency or severity of seizures); tremor; trouble walking; uncontrolled muscle movements; unusual bruising or bleeding; unusual weakness; yellowing of the skin or eyes.
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  #5  
March 14th, 2011, 08:00 PM
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Today- Meeting with school psychologist and behavioral therapy
Tuesday- neuro
wednesday-speech

and first week of baseball and its also finals week.
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  #6  
March 15th, 2011, 09:29 PM
mamma_anna's Avatar Mega Super Mommy
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Ellie has follow ups with her pedi and pulminologist on thurs. and maybe cbt on fri. But other than that, nothing. I'm giving her (and myself) the week off. No PT, no OT and NO PRESCHOOL! (spring break for us but she wouldn't be going anyway)
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  #7  
March 15th, 2011, 09:51 PM
C&K'sMama's Avatar Platinum Supermommy
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Breea - When carrie was on trileptal we had no issue with smell. I hope you guys get that figured out for her.

regular tehrapies for us and a NPS (local new parent program) appt, but no SCHOOL
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  #8  
March 16th, 2011, 03:00 PM
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we had surgery on Monday, post op yesterday and agian tomorrow.
Vision therapy and everything have been put on hold until after the surgeries
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