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  #1  
March 15th, 2011, 12:34 PM
breea's Avatar Mega Super Mommy
Join Date: Jun 2007
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Well in the near future we get to spend 3 days in childrens memorial. I 24-48 hour video EEG, MRI with sedation, Metabolic testing, GI dr testing for celeacs disease, and a new bunch of genetic testing. This new doc thinks she was mis- dx'd or dx'd before proper testing...so here we go agian
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  #2  
March 15th, 2011, 01:10 PM
Ditzzy's Avatar Stupid Lamb;)
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((Hugs)) We've been through all those tests and it sucks to watch your l/o go through so much. Breaks my heart.

I hope you get answers!
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  #3  
March 15th, 2011, 01:15 PM
breea's Avatar Mega Super Mommy
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Its not happening til this summer, but wow what a couple of days that wiill be
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  #4  
March 15th, 2011, 05:57 PM
Ditzzy's Avatar Stupid Lamb;)
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The VEEG isn't too bad. Ave had a 4 day VEEG last month and she did really well with it. The worst part about metabolic and genetic testing is the waiting. Some of the tests can take months to come back.
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  #5  
March 15th, 2011, 06:20 PM
breea's Avatar Mega Super Mommy
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We have had the g-nome testing 2 different ways, been tested for prader-willi, fragile x, and smith magnas syndrom which all came back negitive but he wants them all ran agian. Im not sure way and how do they keep them on because my Breeanna doesnt like things in her hair and are they stuck in a room or can they play. The dr said the fact I mentioned a smell kinda made him do the "light bulb" thing
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  #6  
March 15th, 2011, 08:47 PM
C&K'sMama's Avatar Platinum Supermommy
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We did all those test (except the GI test) in November. I thought it'd be really bad, but it went pretty smoothly. Except that Carrie HATED the air gun they were using to dry the electrode glue on her head.

Hope it goes as smoothly for you guys!
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Last edited by C&K'sMama; March 15th, 2011 at 08:55 PM.
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  #7  
March 15th, 2011, 08:50 PM
mamma_anna's Avatar Mega Super Mommy
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Sorry you guys have to go through all that. Yuck!
What do you think of this new doc so far? He seems thourogh at least.... I hope you get some helpful answers.
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  #8  
March 16th, 2011, 11:06 AM
breea's Avatar Mega Super Mommy
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I actually really like him. He didnt dismiss anything I had to say and listened. Kinda funny a neurologist would listen
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Last edited by breea; March 16th, 2011 at 11:07 AM. Reason: left a word out
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