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Have you met any doctors that suffer from this? It drives me up a wall! Do you have any stories to share about this?
I've met a few residents that had a god complex. They would walk in acting like they knew everything, see Ava (and her labs) and think they knew how to handle a child with mitochondrial disease. One even decided she didn't need an picc line for her hypoglycemia (after 4 failed IV attemps) and gave her glucagon. Needless to say her blood sugar plummeted to 11, Ava was unresponsive,(not even responding to sternum rubs!) and the resident got told off by the attending.
oh yeah . . . Kaiden's neurologist - 'nuff said there . . . and one pediatrician who walked in and with only a glance at Kaiden's chart (he hadn't even laid eyes on him yet) and began telling us why Kaiden wasn't doing stuff (that he actually WAS doing), it was really stupid!!
our doctor (we only have one) has to as he is a surgean but in general no, he is a great guy and very open. Right now we use Silsoft contacts for apahkia (without the lens of the eye) they are 150 a lens and last 3 months. THey are the only one he has used but I told him about some xostum ones that re 180 for a box of 4 and they are more specific to the child, he was willing to look into them and says he sees no problem switching her
The neuro at cook's in fort worth. That's the one who said Carrie's never walk or talk just a few months ago. She didn't observe or listen to carrie. At the time Carrie was in a walker and doing well with it. She just read "isn't walking yet" on the chart and KNEW that carrie never would.
She's not the only one, just the most severe case we've met so far.
"Disability is not a brave struggle or ‘courage in the face of adversity.’ Disability is an art. It’s an ingenious way to live."