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Her neuro doesn't think she'll do anything ever so I hate her.
Her developmental pedi thinks she's Carrie's mind reader and is always trying to tell me what carrie wants and what I'm doing wrong (and is always way off base)
... that's really all she has on a regular basis but all the specialists we've seen are the same story. They don't know whats wrong with her, but she'll never achieve anything
"Disability is not a brave struggle or ‘courage in the face of adversity.’ Disability is an art. It’s an ingenious way to live."
Lately her neurosurgeon. The last few times we've been there we haven't gotten good news. I'm really dreading this next one. Rachel needs to have 10 to 15 words or signs by July 20th or we're looking at surgery.
Do school psychologists count?? Thank goodness we don't have to deal with her anymore!
As for actual doctors....I don't think there are any that I really dread. But Ellie's opthomologist really annoys me. He's a good doctor and I trust his judgement but he can't get Ellie's name right. How hard is that??? Her full name is Elysia and he calls her Aleesha. EVERY TIME! I correct him every time and I've told him repeatedly to just call her Ellie 'cause everyone else does and he just doesn't get it. Drives me CRAZY! And his nurses don't exactly have the best bedside manner. Good thing we don't have to see him often.
Right they her neurosurgeon is thinking of either a shunt or chraic decompression (removed a piece of her skull in back of head). They think that their is pressure on the part of her brain that controls communication and think this may help.
The only one I dread is the regular pedi. Don't get me wrong, she's really nice! but she wants him to gain weight according to the charts and that just isn't going to happen with the diet he's on, period. She's too focused on the average and not enough on the individual.