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Right now...I'm not doing so well. Normally I just promise myself that it will get easier. I will adapt and we can keep moving forward. I am having a really hard time seeing the light at the end of this tunnel though....
I try to get some time to myself as often as I can and go curl up with a good book. Sometimes a glass of wine too. It doesn't really cure my feelings of being overwhelmed but it helps me escape for a while!
We take breaks. Sometimes it's just too much so we dont go. I know that taking a week off isn't going to hurt her in the long run and I gt to pretend we have a "normal" schedule. Typically we take about 2 weeks off a year that I get to just be with my girls. Also I make sure to make "wants" take priority over some therapies. Not that we'd skip PT to get icecream, but we don't avoid the zoo because we have no time to make it, we cancel therapy or rearrange it to fit it in.
Sometimes I need a good cry, but for the most part I make our therapies and such fit into our lives rather than feeling dominated by them.
"Disability is not a brave struggle or ‘courage in the face of adversity.’ Disability is an art. It’s an ingenious way to live."