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Forum: Children with Special Needs

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  #1  
August 30th, 2011, 06:43 AM
Ditzzy's Avatar Stupid Lamb;)
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How close are you and the primary ped? Are they available 24/7? Knowledgable? Do they work well with the specialists? Affiliated with your local childrens? Will they head in-patient care?
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  #2  
August 30th, 2011, 07:02 AM
greenchild's Avatar Platinum Supermommy
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Location: MN
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not at all. In fact, I've given up on the pediatricians. Each one has completely missed or blown off all of Kaiden's serious issues and I've had to learn about and treat them myself.

He doesn't get vax'd and already has a therapy team in place so there's no point in a ped looking for delays. Basically we go in there and he gets weighed and I'm done paying over $200 for that. I have a free scale at home!

I have a lead on a developmental pediatrician, but I'm not really sure it's worth it to make an appt - when we saw the Gillette Children's Specialty dr's at their free clinic, they said to keep doing what we're doing, there was no need for a repeat visit, bc Kaiden's doing so well.
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  #3  
September 9th, 2011, 05:05 AM
challowell's Avatar Mega Super Mommy
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Well my pedi is good for seeing the girls quickly if they are sick but he kept delaying on Jamie's eyes. He is not affiliated with the childrens hospital. I keep him because he actually listens to me when there is a problem. He is still the only one to believe me about Jamie's allergy to disposable diapers
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  #4  
September 9th, 2011, 06:34 PM
C&K'sMama's Avatar Platinum Supermommy
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No to all of it.

Her pedi is actually my family practitioner (not affiliated with any hospital) because the pedis around here are so full it takes months to see anyone (weeks if your kid is REALLY sick and needs to get in "fast"). The doc that she has now is sweet and loves Carrie but isn't knowledgeable at all. She can diagnose if Carrie is sick, but other than that she just lets me tell her what Carrie needs (prescription, equipment, etc) and she makes it happen for me. I like her a lot even though she's not the most involved doctor we've ever had
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  #5  
September 12th, 2011, 06:50 AM
Ditzzy's Avatar Stupid Lamb;)
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Last Spring Ava's first ped sat me down and told me Ava was "over her head." She said she loves Ava and felt Ava needs a more knowledgable ped. She had no experience with complex children. It was an emotional appt and she still sees Dakota and Christian. I called Ava's genetic Dr at Childrens and he recommended a group of pediatricians that only work with complex kids. They are available 24/7, affiliated with CCHMC, and they really know their stuff. When she's inpatient they come daily to see her. Love them.
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