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Jamie gets to go to another specialist.*UPDATE IN POST #8*


Forum: Children with Special Needs

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  #1  
September 23rd, 2011, 07:42 AM
challowell's Avatar Mega Super Mommy
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Jamie had a hearing and vision test at school the other day. They passed her vision since she already is seeing a specialist but she failed her hearing test in her left ear. This is the same ear she failed as a newborn. On her followup as a newborn she reacted to sound so they thought it was a fluke. I got to take her to the doctor next wednesday for another referral to a hearing specialist. This sucks big time. She can't catch a break from anyone.
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Last edited by challowell; October 31st, 2011 at 11:44 PM.
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  #2  
September 23rd, 2011, 09:34 AM
AlexKatieAiden Mommy's Avatar Linda
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So sorry you are going through this. But on the positive side, atleast you found out now so if it is something serious, you can get it taken care of.
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  #3  
September 23rd, 2011, 06:35 PM
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Sorry you guys have yet another specialist and yet another problem... I hope if it is severe they can fix it! Could it be related to the other things she has going on or did she just draw the short straw? That is how we have to think of Danny right now. A million different things going on and seemingly no connection between them....
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  #4  
September 23rd, 2011, 07:30 PM
challowell's Avatar Mega Super Mommy
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They do not know yet. We were told with her eyes the two possibilities were she was premature or it is genetic. Well she was almost two weeks overdue so it is not prematurity. Part of me wonders if it is due to the beginning of my pregnancy with her. I had no clue I was pregnant for the first 5 months of my pregnancy. I ate horribly and worked nights a lot and was going on little to no sleep. I know that is not good on the baby and I was low on folic acid so I worry that may have been part of the problem.We just have to wait and see and hope it is not as severe as they think it is.
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  #5  
September 24th, 2011, 09:10 PM
C&K'sMama's Avatar Platinum Supermommy
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I'm sorry to hear that! If they think it's prematurity or genetic, than you couldn't have done anything to stop it. Even if you feel that you could, remember you can't blame yourself for things you did before you knew you were pregnant. That's not fair to you. I'm hoping for the best, for both of you guys!

(Both of my kids have failed multiple hearing tests, but have good hearing after repeated testing and specialists, maybe it's nothing to worry about after all?)
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  #6  
September 28th, 2011, 08:40 AM
challowell's Avatar Mega Super Mommy
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Well we now know there is no excess fluid behind her ears, no earwax buildup, no infection, and no deformities of the eardrum. We are no closer to finding what is wrong than when we found out. The pedi wants to put her on Clairtin for a month to rule out allergies and then recheck her in a month. She already hates the taste so it is going to be a battle for the next month.
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  #7  
September 30th, 2011, 12:55 PM
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I am so sorry you are going through this. YOU did NOTHING wrong!!!!
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  #8  
October 31st, 2011, 11:40 PM
challowell's Avatar Mega Super Mommy
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Well she saw the local audiologist today. She said she can see her favor an ear and the testing does show a difference in her ears but since she can hear sounds in a room with speakers they are not going to do nothing right now. I really do not know what to think. They can SEE on their machines a difference. They SAW her turn so Her right ear was listening to the sound. They did not do the test with the headphones where the sound only goes to one ear at a time. I don't know if I should push it or not. I didn't push with her eyes and I waited way late for her eye surgery. I'm afraid if I am too pushey they will think I am one of those people who are never satisified with a doctor's answer. I just want to go outside and scream. And to top it off I had to take Jamie to the ER sunday night because she spiked a temp while I was at work and no one gave her Tylenol. So after 4 hours in the ER they tell us she has Croup and it is causing her high temp( rarely does croup cause fever). They send us home and said to give Tylenol and Ibuprofen for the next few days and to take her outside if she gets to coughing. I need a vacation.
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  #9  
November 1st, 2011, 11:57 AM
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Did she pass at birth or did they not test at birth? If both ears were normal at birth I would at least push for frequent checks...once every 2-4 months maybe? If they were off at birth too I would follow their recommendations. If it is a progressive thing I would push for testing and such to make sure it doesn't start to effect her other ear. :/
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  #10  
November 2nd, 2011, 01:39 PM
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She failed her newborn screening but passed two weeks later.
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  #11  
November 7th, 2011, 11:09 AM
mamma_anna's Avatar Mega Super Mommy
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Just reading this post and wanted to offer some T&P's for you and your girls. I hope the croup goes away quickly and you get some answers about her hearing soon.
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  #12  
November 11th, 2011, 12:49 PM
challowell's Avatar Mega Super Mommy
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WOOHOO SECOND OPINIONS ROCK!!! We went to Columbus for a second opinion today. They worked with her for an hour and a half. NO HEARING LOSS! They said that once she is bored she will tune them out but she can hear. We are so glad we went.
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  #13  
November 11th, 2011, 12:52 PM
mamma_anna's Avatar Mega Super Mommy
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That's Awesome! Hooray for second opinions!
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