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I hate respite... I won't go further but they're useless and horrible to deal with. We've spent months going through this mess and have given up. We get 26 hours a month and have never been able to use a single hour.
"Disability is not a brave struggle or ‘courage in the face of adversity.’ Disability is an art. It’s an ingenious way to live."
no, we don't get any "official" respite care. Of course the grandparents have offered many times to take Kaiden for a day or so, but right now I just can't imagine it. Al I need is DH to occasionally take him out of my hair for a few hours, and it's always do-able.