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Biopsies and such came back...


Forum: Children with Special Needs

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  #1  
November 27th, 2011, 08:42 AM
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The GI said that the bile reflux is likely from his digestive tract not constricting and flowing like it should and that the bile refluxing into his stomach is causing the gastritis and possibly the ulcers. She gave us a prescription for carafate to fill as needed but once we decide to fill it he is on it for 30 days. The upper biopsies all came back normal aside from the gastritis. Again, she didn't do the esophagus because of all the gagging and throwing up from the NG tube...

The colonoscopy biopsies showed no eosinophilic issues so we are currently resting at food allergies. He was supposed to get patch testing put on this coming Wednesday and taken off Friday but he got a sinus infection which has REALLY flared his asthma. He has been on Xopenex treatments every 2 hours since Friday night and if we can't cut them back before Monday we have to go back in. The allergist called in Corzall to try and diminish his cough last night to see if the inflammation would go down if he wasn't coughing at least once per minute...literally. The Corzall helped but with the oral steroids he is on combined with the Xopenex treatments and his inhaler adding the pseudophedrine in the cough syrup overloaded the "steroid meter" and held his heart around 130-140 for 2 hours. So, we can't repeat that. He has allready started coughing quite a bit again and has been wheezing, I guess due to not coughing so much even though it is a dry cough, so much coughing I guess kept the "wet" cough away... So we are back on neb treatments every 2 hours. Ugh... Anyway, with the steroids they can't do the patch testing so we will have to reschedule that Monday too... We just can't win...
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  #2  
November 27th, 2011, 07:23 PM
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carafate is a great med but you have to follow the directions to a "T". It can be a pain. It really sounds like you're getting some generic answers and I'm sorry for that. I hope he feels better!
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  #3  
November 28th, 2011, 02:54 PM
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wow what a mess.. I pray it gets better soon
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  #4  
November 28th, 2011, 08:44 PM
MommaLexi's Avatar Adoptive and Foster Mommy
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So sorry for the little guy I have horrible asthma that still isn't controlled at 23, so I know how he feels there. I'll be praying for him and for answers!
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  #5  
November 28th, 2011, 09:20 PM
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Poor Danny!
I'm glad you're getting some answers. Even if they're not necessarily helpful. I'll be praying that this latest respitory thing clears up quickly. I can relate to those every 2 hour neb treatments. Not fun for either of you.
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  #6  
November 30th, 2011, 09:56 AM
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We finally seem to be turning a corner with the respiratory stuff. He went in yesterday to the allergist and saw one of the PAs. She said that if he needs them every 2 hours keep doing them every 2 hours. She also had us call in this morning and left a patient's room to answer the phone. I love this office! She said that his normal doc agreed not to up the oral steroids but called in a cough syrup without steroids so that his HR won't go up. She said if he is wheezing again tomorrow morning than don't give it to him again but that if it works and doesn't make the wheezing worse that we can continue it through Friday night. We are supposed to call in tomorrow and check in again and he has a recheck Friday afternoon. We have been able to get nebs to every 2.5 to 3 hours today so far. We will see if that stays....
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  #7  
November 30th, 2011, 07:53 PM
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Yay for small improvements. Praying it continues and hoping the medicine works.
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