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Forum: Children with Special Needs

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  #1  
December 20th, 2011, 07:54 AM
Ditzzy's Avatar Stupid Lamb;)
Join Date: Sep 2007
Location: OH-IO
Posts: 9,023
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Let's do a health check in! How are everyone's kiddos doing?
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  #2  
December 20th, 2011, 10:06 AM
Super Mommy
Join Date: Jun 2009
Posts: 930
right now john isnt doing so hot.
he's down to 26Ibs again, from not eating, hes had a horrible rash on his butt that nothing is helping. (he was up to 28Ibs)
We go for our endoscopy jan 12 and that cant come soon enough.
He wont even eat his fav's, wont drink his milk, or juice and water is a fight.
Im frustrated with the drs who just think its a stage and im over concerned.
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  #3  
December 20th, 2011, 07:51 PM
MommaLexi's Avatar Adoptive and Foster Mommy
Join Date: Nov 2011
Location: The Desert ;)
Posts: 587
Praying for John!

Solas and Alyssa are doing well. Alyssa is getting through the last stages of whooping cough.

Avery is battling another case of Pnemonia Prayers that she can fight this and we can stay out of the hospital.
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  #4  
December 20th, 2011, 08:39 PM
mamma_anna's Avatar Mega Super Mommy
Join Date: Feb 2011
Posts: 1,953
I'm sorry John's still having such a hard time. Praying for him.
Glad Alyssa is getting over the whooping cough. That's just no fun. Poor Avery! Many ((((HUGS)))) and PRAYERS for her.

We're in a similar spot with Ellie right now. Everyone in this house has a cold. I swear, even the cats are sneezing Ellie is coughing and wheezing really bad. We’ve increased her neb treatments and are hoping it's enough to stay out of the hospital this time. It doesn't take much to get her there.

She is doing great with PT and OT. She’s using her walker about 75% of the time now and really improving her strength and balance. Endurance is still an issue but we’re working on it.

Anxieties/communication issues….well….improvement in this area seems to be slowing down. But she’s not regressing so I’ll take it.
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  #5  
December 21st, 2011, 08:39 PM
Mega Super Mommy
Join Date: Jun 2007
Location: Knoxville,Tennessee
Posts: 3,593
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Ugh...that is about all I can say right now. We are getting up to Cinci to get labs drawn though...a little overdue but we shall see what it reveals...
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  #6  
December 22nd, 2011, 05:09 PM
~LaurenNoel~'s Avatar Platinum Supermommy
Join Date: Mar 2009
Location: Florida
Posts: 7,909
Pretty well. Ruby is doing awesome, and eating almost everything by mouth. Wes just got his tube, and isn't taking anything by mouth, but I hope that helps heal some of his gastritis. He has allergy testing next week, and I hope we get some answers as far as the EE.
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///...........................Lauren, wife to Jay, mom to Wesley and Ruby

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................ ...

Wesley (7.16.09) Severe GERD, FTT, Gastroparesis, Sensory Processing issues, Tube fed, (G tube currently), suspected Mitochondrial Disease, trialing Gastric Stimulator. Nissen Fundoplication 7/2012
Ruby (2.16.11)
Nissen Fundoplication and Hiatal hernia repair 10/25/11
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