Log In Sign Up

Cincinnati sent back some interpretation


Forum: Children with Special Needs

Notices

Welcome to the JustMommies Message Boards.

We pride ourselves on having the friendliest and most welcoming forums for moms and moms to be! Please take a moment and register for free so you can be a part of our growing community of mothers. If you have any problems registering please drop an email to boards@justmommies.com.

Our community is moderated by our moderation team so you won't see spam or offensive messages posted on our forums. Each of our message boards is hosted by JustMommies hosts, whose names are listed at the top each board. We hope you find our message boards friendly, helpful, and fun to be on!

Reply Post New Topic
  Subscribe To Children with Special Needs LinkBack Topic Tools Search this Topic Display Modes
  #1  
January 19th, 2012, 10:52 AM
Mega Super Mommy
Join Date: Jun 2007
Location: Knoxville,Tennessee
Posts: 3,593
Send a message via AIM to i3ai3ydanny
I am really trying not to google or search or learn anything about this one until he gets back to me. There is nothing I can do to change anything until we know yes or no so please don't tell me anything about it if you do know. I know it won't be good if that is what he has but here is the email from the hematologist in Cincinnati.

"We did these additional labs to rule out a disorder known as HLH (hemophagocytic lymphohistiocytosis) which can cause splenomegaly (he has a slightly enlarged spleen) and low blood counts. In HLH, usually the triglycerides are high, fibrinogen is low. His fit that pattern, but in HLH they are usually much more abnl than Danny's are. I am going to ask one of our immunologists to look over the results and see what they suggest."

I will insert that at least one other thing is low NK function...Danny's was at the " less than x" level of low. That is one of the reasons he has tested for this.

So I am really hoping the consult says no but I know they sent of genetic tests too so we will likely have to wait to get a 100% answer until after that comes back if this is the disorder the genetic test is for.
__________________

Thanks .:Shortcake:. for my GREAT siggy.



Reply With Quote
  #2  
January 19th, 2012, 04:11 PM
Ditzzy's Avatar Stupid Lamb;)
Join Date: Sep 2007
Location: OH-IO
Posts: 9,023
Send a message via Yahoo to Ditzzy
Docsmomma (Traci) has a son with it and he just had a BMT and is doing well. I'd PM her and ask questions!

I wouldn't freak out until you see a hem/onc and get a firm diagnosis! ((Hugs))
__________________




Thank you, tasha_mae, for my siggy!
Reply With Quote
  #3  
January 19th, 2012, 04:44 PM
Mega Super Mommy
Join Date: Jun 2007
Location: Knoxville,Tennessee
Posts: 3,593
Send a message via AIM to i3ai3ydanny
That's why I am not googling... too many horror stories on there. I am waiting to talk to the docs. Dr. H is consulting the doc that treats that regularly. I am trying not to really think about it at all until then.
__________________

Thanks .:Shortcake:. for my GREAT siggy.



Reply With Quote
  #4  
January 19th, 2012, 06:38 PM
Ditzzy's Avatar Stupid Lamb;)
Join Date: Sep 2007
Location: OH-IO
Posts: 9,023
Send a message via Yahoo to Ditzzy
I understand! I was the same way with the Mito diagnosis. If you do cave, remember not to believe everything you read!
__________________




Thank you, tasha_mae, for my siggy!
Reply With Quote
  #5  
January 19th, 2012, 08:16 PM
Mega Super Mommy
Join Date: Jun 2007
Location: Knoxville,Tennessee
Posts: 3,593
Send a message via AIM to i3ai3ydanny
I know... I found that out with SDS... That is why I am not even attempting this time. I have had too many "false alarms" to willingly get freaked out about this one.
__________________

Thanks .:Shortcake:. for my GREAT siggy.



Reply With Quote
  #6  
January 20th, 2012, 09:22 PM
mamma_anna's Avatar Mega Super Mommy
Join Date: Feb 2011
Posts: 1,953
Many hugs and prayers for you and Danny! Please kup.
__________________






Reply With Quote
Reply

Topic Tools Search this Topic
Search this Topic:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off



All times are GMT -7. The time now is 07:57 PM.



Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2014, vBulletin Solutions, Inc.
Search Engine Optimization by vBSEO 3.6.0