Log In Sign Up

Is this the right Board for me


Forum: Children with Special Needs

Notices

Welcome to the JustMommies Message Boards.

We pride ourselves on having the friendliest and most welcoming forums for moms and moms to be! Please take a moment and register for free so you can be a part of our growing community of mothers. If you have any problems registering please drop an email to boards@justmommies.com.

Our community is moderated by our moderation team so you won't see spam or offensive messages posted on our forums. Each of our message boards is hosted by JustMommies hosts, whose names are listed at the top each board. We hope you find our message boards friendly, helpful, and fun to be on!

Reply Post New Topic
  Subscribe To Children with Special Needs LinkBack Topic Tools Search this Topic Display Modes
  #1  
April 16th, 2012, 09:44 AM
Mega Super Mommy
Join Date: Aug 2008
Location: Lancaster, PA
Posts: 2,182
Send a message via Yahoo to shannonkcc
Hi, My name is Shannon. DH is Tony. We have 2 DD's, Athena (9) and Crystal (2). Crystal has been suffering from reccurent (monthly) fevers since Nov of 2010. She was hospitalized the month before with MRSA. On top of the fevers she has also been dealing with severe abdominal pain and rashes. She was hospitalized in Nov of 2011 at which point doctors from all over the area came to check her out because they had no clue what was causing her to have a 105 degree fever and no underlying causes. She has now seen a Rheumatologist who can no longer help her so she is being referred to an Infectious Disease Doctor. She will also be seeing a GI Specialist in hopes of finding out what is wrong with her. I'm at a point now where I am about to suffer a mental break down. DH and I both have exhausted all of our time off from work. She goes to the doctor several times a month is not several times a week. We are hurting financially and our oldest DD is starting to have trouble dealing with her sister's medical issues. I'm just looking for some support because right now no one else around me has been very supportive. Thanks.
__________________

Thank you "Babydoll213" for a beautiful siggie.



Reply With Quote
  #2  
April 16th, 2012, 01:17 PM
mamma_anna's Avatar Mega Super Mommy
Join Date: Feb 2011
Posts: 1,953
Hi Shannon. Welcome to the children with special needs board. I'm glad you came. It's definitely the right place for you. It seems to be a small group right now but it's a great place to ask questions, share ideas, vent, cry, laugh whatever.

to you! I can't imagine how frustrating it must be to see your little one suffering and not know why. There are other moms on this board dealing with medical mysteries so you're not alone in that. I hope we can all be of some support to you.

I'm Anna btw. My husband Rick and I have 4 beautiful daughters. Meagan is 15, Abbey is 13, Kayla's 9 and Ellie is 6. Ellie has chronic lung disease, moderate cerebral palsy and severe anxiety with selective mutism. Her sisters are all very supportive and helpful but they have rough days too. I never feel like I'm giving them enough attention.
to Athena too! It can be tough being the sibling. But Chrystal is lucky to have her.

I hope you'll stick around. Looking forward to getting to know you and your family.
__________________






Reply With Quote
  #3  
April 19th, 2012, 09:38 AM
Mega Super Mommy
Join Date: Jun 2007
Location: Knoxville,Tennessee
Posts: 3,593
Send a message via AIM to i3ai3ydanny
I am Sarah, mommy to DS Danny (will be 5 in July). We are one of those "mystery" kid families too. Danny has been tested for nearly everything under the sun but they are still testing to try to figure out the connecting factor for his MANY issues... Most of them are internal except for an occasional clotting issue (also with an unknown cause) when he gets bruises like CRAZY! Welcome to the board and I hope you stick around!!!
__________________

Thanks .:Shortcake:. for my GREAT siggy.



Reply With Quote
  #4  
April 20th, 2012, 12:31 PM
Newbie
Join Date: Aug 2011
Posts: 4
Not sure if they have looked into it, but food allergies/intolerances can cause many problems. My daughter was getting sick frequently with high fevers. It seemed like we were always at the doctors office. Removing food allergens/intolerances helped immensely.
Reply With Quote
  #5  
April 21st, 2012, 10:23 AM
Mega Super Mommy
Join Date: Jun 2007
Location: Knoxville,Tennessee
Posts: 3,593
Send a message via AIM to i3ai3ydanny
Same here plc4x1. Different symptoms but that is what our next move is for too...
__________________

Thanks .:Shortcake:. for my GREAT siggy.



Reply With Quote
  #6  
April 24th, 2012, 02:21 PM
MommaLexi's Avatar Adoptive and Foster Mommy
Join Date: Nov 2011
Location: The Desert ;)
Posts: 587
I have no advice, I just wanted to say you are definitely in the right place! The group here is small but very supportive! I'll be praying or your family and your daughter!

I'm Lexi, Mommy to Avery, who has HIV, Fetal Alcohol Syndrome, hearing loss, and a feeding tube (soon to be removed). I'm also adopting another daughter with HIV. I have 3 foster children with various special needs as well.
__________________




FD ~ Squishy, 8mos old, Down Syndrome, Heart Disease (post open-heart surgery)
Reply With Quote
  #7  
April 26th, 2012, 09:48 AM
Ditzzy's Avatar Stupid Lamb;)
Join Date: Sep 2007
Location: OH-IO
Posts: 9,023
Send a message via Yahoo to Ditzzy
I'm sorry I just saw this. My DD has cyclic fevers and has been seen by ID and Rheum. ID told me there are a small group of cyclic fever disorders that are benign and children do outgrow them. There is one in particular that also has neutropenia with the fevers. We've been dealing with this 4 yrs and honestly it's the least of our worries (as far as her medical issues go). The fevers are very high and last 48 hrs or so, every month.
__________________




Thank you, tasha_mae, for my siggy!
Reply With Quote
Reply

Topic Tools Search this Topic
Search this Topic:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off



All times are GMT -7. The time now is 09:58 PM.



Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2014, vBulletin Solutions, Inc.
Search Engine Optimization by vBSEO 3.6.0