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Hi, My name is Shannon. DH is Tony. We have 2 DD's, Athena (9) and Crystal (2). Crystal has been suffering from reccurent (monthly) fevers since Nov of 2010. She was hospitalized the month before with MRSA. On top of the fevers she has also been dealing with severe abdominal pain and rashes. She was hospitalized in Nov of 2011 at which point doctors from all over the area came to check her out because they had no clue what was causing her to have a 105 degree fever and no underlying causes. She has now seen a Rheumatologist who can no longer help her so she is being referred to an Infectious Disease Doctor. She will also be seeing a GI Specialist in hopes of finding out what is wrong with her. I'm at a point now where I am about to suffer a mental break down. DH and I both have exhausted all of our time off from work. She goes to the doctor several times a month is not several times a week. We are hurting financially and our oldest DD is starting to have trouble dealing with her sister's medical issues. I'm just looking for some support because right now no one else around me has been very supportive. Thanks.
Hi Shannon. Welcome to the children with special needs board. I'm glad you came. It's definitely the right place for you. It seems to be a small group right now but it's a great place to ask questions, share ideas, vent, cry, laugh whatever.
to you! I can't imagine how frustrating it must be to see your little one suffering and not know why. There are other moms on this board dealing with medical mysteries so you're not alone in that. I hope we can all be of some support to you.
I'm Anna btw. My husband Rick and I have 4 beautiful daughters. Meagan is 15, Abbey is 13, Kayla's 9 and Ellie is 6. Ellie has chronic lung disease, moderate cerebral palsy and severe anxiety with selective mutism. Her sisters are all very supportive and helpful but they have rough days too. I never feel like I'm giving them enough attention.
to Athena too! It can be tough being the sibling. But Chrystal is lucky to have her.
I hope you'll stick around. Looking forward to getting to know you and your family.
I am Sarah, mommy to DS Danny (will be 5 in July). We are one of those "mystery" kid families too. Danny has been tested for nearly everything under the sun but they are still testing to try to figure out the connecting factor for his MANY issues... Most of them are internal except for an occasional clotting issue (also with an unknown cause) when he gets bruises like CRAZY! Welcome to the board and I hope you stick around!!!
Not sure if they have looked into it, but food allergies/intolerances can cause many problems. My daughter was getting sick frequently with high fevers. It seemed like we were always at the doctors office. Removing food allergens/intolerances helped immensely.
I have no advice, I just wanted to say you are definitely in the right place! The group here is small but very supportive! I'll be praying or your family and your daughter!
I'm Lexi, Mommy to Avery, who has HIV, Fetal Alcohol Syndrome, hearing loss, and a feeding tube (soon to be removed). I'm also adopting another daughter with HIV. I have 3 foster children with various special needs as well.
I'm sorry I just saw this. My DD has cyclic fevers and has been seen by ID and Rheum. ID told me there are a small group of cyclic fever disorders that are benign and children do outgrow them. There is one in particular that also has neutropenia with the fevers. We've been dealing with this 4 yrs and honestly it's the least of our worries (as far as her medical issues go). The fevers are very high and last 48 hrs or so, every month.