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hello sweet*life. I personally do not have a child with muscluar distrophy but I have worked with many residents at my workplace with it. I know it can be frustrating to feel like the only person dealing with a complex issue like that but we are here to support you . The board is just a little slow right now.
I hope you will come back and post here whenever you feel the need to or even just to say hi and get to know us. It's a small and slow moving group right now but we're very supportive of each other and we'd love for you to join us if you want.
I'm Anna btw. Wife to Rick and mamma to 4 girls; Meg, Abbey, Kayla and Ellie.
Ellie has cerebral palsy, chronic lung disease and severe anxiety.