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I have a sweet lil 3 month old boy named Reece, and he was born with Spina Bifida lipomyelomeningocele. Next week he will be under going a long surgery to unether his cord and remove the fatting lesion. Are there any other Spina Bifida mommies here?
Yep. You're definitely in the right place. to the board!
I don't know of any moms in here who are dealing with spina bifida specifically but its a very diverse group. We're dealing with a wide range of special needs and we all have things in common.
I'm Anna. Mamma to 4 beautiful girls. Meagan is 16, Abbey's almost 14, Kayla's 9 and Ellie is 6.
Ellie has multiple special needs including cerebral palsy, chronic lung disease and severe anxiety.
Praying for Reece and a successful surgery. to you! I hope you'll stick around and continue to post in here so we can get to know you better and hopefully be of some support. Keep us posted on the surgery.
Welcome! I am Sarah, mommy to DS Danny (almost 5). Danny has several medical issues but not spina bifida. His father had a mild form of it and my cousin has a baby that had the unborn surgery to correct hers. I hope the surgery goes well and that you will stick around!
my nephew was born with this type of Spina bifida......he is now almost 16 years old and if you didnt know him would never be able to tell he was born with this....he has had to have many surgeries to untether his cord through out the years and has learned to self cath.....but he dates, plays sports and makes straight A's. Good luck with your little boy!
Wife to Jeremy(33)
An Angel (Miscarried July 17, 2006)
Baby BOY!!!!(due Dec. 21, 2013)