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My name is Jess and one year ago I adopted my beautiful daughter, Lily, from an orphanage in Ukraine. She was 27 months when we adopted her and is now 3 years old. We knew she had Down syndrome and that was it...her heart conditions that required OHS last summer were a surprise to us, and now it's looking more and more like she has autism as well I am pretty crushed by the autism dx, to be honest.
So I don't know if there is anyone here with a child with a dual dx of DS and autism...if so please reply! I'd love to get to know you and pick your brain. With Lily it is really hard to know what is a result of neglect/abuse from orphanage life (I guess about 80% of her delays are a result of that), what is Down syndrome, what is possibly autism, what is sensory issues, and what is just normal developmental stages. Right now she functions on about an 8-month-old level.
Looking forward to getting to know all of you!
(And PS--just found out I'm pregnant! First time!)
Sorry I'm just now seeing this and am a little late in replying but first of all....
Hi Jess! Welcome to the board and congrats on your pregancy!
I'm Anna. Wife to Rick and Mamma to 4 beautiful girls. Meagan is 16, Abbey's 14, Kayla's 9 and Ellie is 6.
Ellie has been with us for about 2 1/2 years and her adoption was final 18 months ago. She has chronic lung disease, cerebral palsy and severe anxiety with selective mutism (secondary to PTSD). She also has some mild sensory issues and some of her behaviors, especially when she's overwhelmed or stressed out can look a lot like autism. Like you said it can be hard to tell sometimes what's really a sensory issue or an anxiety issue, what's because of her past or what's just her personality.
I'm really glad you joined us in here. The board has really slowed down in the last few weeks but it's a really supportive and diverse group. We're dealing with a wide range of special needs but we all have things in common and we like to help eachother. I know there are at least 2 other moms in here with LO's with downs syndrome but I haven't seen either one of them in a while. I hope they'll pop back in soon.
Praying for a healthy pregnancy for you and looking forward to getting to know you and Lily better!
Hi Jess! My soon-to-be-adopted DD has down syndrome, fetal alcohol syndrome, was born addicted, has developmental delays, feeding problems, lung problems, heart problems, the list goes on. My oldest daughter has Asperger's, which is a form of Autism. I'm here for support, advice and encouragement should you need it.