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Hi , my name is Kai and i have a son Alex who´s 10.months old. We live in Estonia. Alex was born "dead" , he is intubated , resuscitated and treated with hypothermia. He´s agpar was 0/2/4 . Now our development is on 3,5 months baby level. We still can´t hold head properly , there´s some progress . We still have infants reflexes like babkin reflex , moro reflex and asymmetrical tonic neck reflex. Doctors do not want to predict our future , that´s because we live one day at a time. We live in a black hole. Couple months ago we had an MRI and it showed a brain atrophy.
Is there anyone who´s had similar experience. We are searching companions who could get us some information or tips for development.