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TTC knowing you could pass on a genetic disorder


Forum: Children with Special Needs

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  #1  
July 27th, 2013, 02:01 PM
Newbie
Join Date: Jul 2013
Posts: 5
Anyone here deal with a genetic disorder in one of their children, and then agonize over whether to TTC another?
I have three children. My second child (oldest son) has a genetic neurological disorder that causes movement issues. He is mentally normally functioning, plays, has friends, likes to sign up for swimming, soccer, etc...
But, he will never be able to keep up with his friends. He wears AFOs on his legs right now, and most likely always will need them. He has primary dystonia, though we don't know which type. We also do not know whether this is something that we passed on to him (and we just never had any symptom manifestation), or whether it was spontaneous mutation.

SO.... We've decided we're ready to TTC our last one, and that will make it four. In the back of my mind, however, I feel guilty, knowing that there's a possibility this child could have what DS has.

I don't and won't know what's in store for DS and his disability until many many years from now. His progression may plateau and he may live life with just a mild, inconvenient disability. Or... his progression may keep going and going, and he could live life with a very difficult disability.

Sigh.
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  #2  
August 2nd, 2013, 11:40 AM
Britt3's Avatar Super Mommy
Join Date: Aug 2009
Posts: 861
I completely understand what you are going through. My son has 4 different disorders and I'm going to be TTC (#2 for me) with my SO soon. My SO isn't my son's father, but I'm still completely scared that we will have a child with the same disorders. It has scared me to the point that I'm not sure I want to TTC or have anymore. But, I also can't live in fear, and I know the odds are in our favor that we/I won't pass it on (again). I don't really have a good answer for you.. .only saying that I feel your pain.
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