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Desperately Need Support-Joint Hypermobility


Forum: Children with Special Needs

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  #1  
August 20th, 2013, 01:42 PM
Mega Super Mommy
Join Date: Aug 2008
Location: Lancaster, PA
Posts: 2,182
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Hi! I'm Shannon my DD, Crystal, is 3 years old and was diagnosed with Joint Hypermobility Syndrome in May. This was after 2 years of trying to figure out what was wrong with her. She was just diagnosed last week with Amplified Musculoskeletal Pain Syndrome and Amplified Sensitivity. She is always in pain. They are getting ready to start her on a PT program. My problem is the distance. We live in Lancaster PA and she is going to CHOP about 2 hours away or more with traffic. She may have to go several times a week. I would really love to talk with other moms dealing with these types of issues. Not just the illness itself but all the stress that goes with it. I'm at a breaking point. Thanks
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  #2  
September 9th, 2013, 11:57 AM
*Jennifer*'s Avatar Platinum Supermommy
Join Date: Oct 2008
Location: California
Posts: 5,500
Huge HUGS. I know you have been trying to figure out what is going on with her. I am so sorry you little girl has to deal with this. I don't know anything about her condition, but I understand being at a breaking point. I couldn't imagine not only knowing my child is in constant pain, but also having to drive 2 or more hours one way several times a week.
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