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I am on a online group for my son's diagnoses and its really the only support group I need at this time. At first I think I needed a in person support group but I don't feel I need it as much now.
There are no support groups in my area that come even close to my son's condition either.
Wife to Brian since October 2004, Mama too:
Jakob (May 12th 2004- Feb. 24th 2009 Had Joubert Syndrome RIP)
2 Baby beans lost
Ava Sept 14th 2007, Beaux Oct 3rd 2012
* Tubal reversal December 17th 2010
I was just chosen for the board of director's for Savannah's Down Syndrome group! I was so surprised and honored It's a great group of parents/friends overall. I also belong to an online Ds support group. I am lucky with Ds being so common I guess.
Kristin, mommy to Matthew (10.5), Thomas (6) and Leah Kate (8/27/07)