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  #1  
August 12th, 2009, 11:31 AM
niknok's Avatar Mega Super Mommy
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To spare typing it all out again, this is cut and paste from my blog.



"""I took Drake into the pediatrician today for a weight check, and to discuss his loose stools and diaper rash. Instead of gaining weight in the last month, he has lost an ounce instead. Dr. Dorsey had the same opinion I did, that it's time to refer Drake to a pediatric GI specialist. I had the forethought to take a dirty diaper in with me today, so they sent a bunch of tests off on his stool. Dr. Dorsey is deferring all lab ordering to the GI specialist, to avoid Drake being stuck two separate times. He also ordered another non lab test that we'll have done on an outpatient basis at the hospital. We see the GI specialist next week, and hopefully after all the blood work he orders, we'll have some answers. Differential diagnoses range from very simple things, to very serious diseases.

We are obviously hoping and praying that there is nothing serious wrong with our little man. In better news, he remains extremely happy. I'm glad that whatever is keeping him from gaining weight doesn't make him feel poorly.

I appreciate any and all kind thoughts, but please don't call me to discuss this. I really don't feel like talking about it, other than what I put on here.

Just seeing "FTT" written on his referral sheet was about enough to send me over the edge. I don't understand why my sweet little man is "Failure to Thrive", but it breaks my heart. I'm just happy that he has no idea he's "FTT". For all of you non medical folks, FTT is a very general description for babies/kids who have poor weight gain.

Part of me is pissed off, because I feel like I've done everything "right". I obeyed all the rules when I was pregnant. I had a natural childbirth that hurt like hell, to spare my child the effects of all the drugs and complications associated with epidurals and C-Sections. I breastfeed, even though it hurt in the beginning, and isn't always the most convenient thing. I make some of my own baby food, to spare Drake all the chemicals and crap in the store bought food. I have him play with wooden toys, to avoid the dangers in the plastic ones. But alas, none of these things have protected him. So here I sit, pissed off at the fact that plenty of women who HAVEN'T done these things have perfectly healthy babies. Tomorrow night, I'll probably go to work and do a C-section on some crackhead ***** (literally), who has a perfectly healthy child.

I guess my parents were right. Sometimes life just isn't fair.""""






I didn't want to say this on my blog, but a couple of the possible diagnoses are cystic fibrosis and celiac disease. I'm scared to death. I'm waiting on the peds office to call back and tell me when they got his "sweat test" scheduled. That's what will tell us if he has CF. We see the GI next Wednesday. It's going to be a rough few weeks around here
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  #2  
August 13th, 2009, 03:51 AM
LisanAndy's Avatar Platinum Supermommy
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Oh hun I'm so sorry! I'm praying that everything is alright with your little man. Maybe it could be something as simple as he's being a little more active so he's reached a point where he's not going to gain more weight at the moment? I know that happened to Taylor. Just trying to be helpful so it's just a thought. ((HUGS))
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  #3  
August 13th, 2009, 04:52 AM
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Ohhhh noooo I'm so sorry that this is happening. Despite it all, I am also glad that its not affecting his happiness. I pray that everything is fine and that you guys will get through this safely with a happy ending.
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  #4  
August 13th, 2009, 06:01 AM
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*HUGS* I'm so sorry... I will keep you guys in my prayers! Please keep us posted on everything!!
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  #5  
August 13th, 2009, 06:09 AM
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I hope it isn't anything serious! I can't imagine how you are feeling right now. Your life must be completely upside down. I hope you get your answers very very SOON. Whether it is serious or not, it's not anything you did, you are a wonderful mommy!

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  #6  
August 13th, 2009, 06:10 AM
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I'm so sorry you're going through this scariness. I don't know why the medical community insists on using terms like "failure to thrive." He's happy... he's thriving! He's just not gaining weight. The diagnosis should read "one ounce weight loss." Why even throw the word failure in there? It does nothing but make parents feel guilty. You're right, you've done everything you can to protect Drake from the bad things in life. And you never know what you might have already prevented and what good you have already done for his health based on those actions. You're not superwoman though, you can't control every aspect of his universe, and NO ONE can fault you for that... including you. I hope that it is nothing serious. Try to hang in there during the next couple of weeks while you're waiting for answers.
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  #7  
August 13th, 2009, 06:19 AM
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I'm so sorry. I'm sending you some positive vibes that all will be well and Drake will be fine. I know it's hard not to assume the worse and to try to prepare yourself for it but perhaps it could just be something minor. I'm praying that it is.

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  #8  
August 13th, 2009, 06:37 AM
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Oh sweetie I hope that it turns out to be nothing serious! I hope they can quickly figure out what is wrong.
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  #9  
August 13th, 2009, 06:47 AM
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Oh sweetie I can not even imagine, Drake and you are both in my thoughts and prayers please keep us updated on everything!! Were all here for you!!

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  #10  
August 13th, 2009, 06:48 AM
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i'm so sorry, that sounds so frustrating, especially after doing everything right. i really hope it turns out to be nothing serious for drake. maybe he's lactose intolerant or something? *hugs*
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  #11  
August 13th, 2009, 07:19 AM
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I'm so sorry Nikki that Drake is not gaining weight...but praise God he doesn't seem to act as though he feels bad....my Harrison was like this...even if he had the worst ear infection he was happy and playing....if he didn't get fevers with them I'd never know he had them. Drake is in my prayers. You are right though, life isn't fair. I did and do all the "wrong" things I guess and my kids have been pretty healthy. It just goes to show that no matter what we do there is no rhyme or reason as to why and how things happen with our little ones.

By the way -how is sleep training going? I'm fascinated by sleep training. I've already started with Nora. She goes down for bed slightly awake and also goes back down after her night time feeding slightly awake. She's already putting herself to sleep without any crying just a little bit of night noises. I'm so excited!
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  #12  
August 13th, 2009, 07:24 AM
♥Ashley♥'s Avatar Platinum Supermommy
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Oh my gosh! Im so sorry that you have to go through this Nikki! Im glad that Drake seems like he isnt bothered by it at all! It must be so rough on you! Please dont think you did anything wrong, you did absolutely EVERYTHING in your power to make sure Drake was a healthy baby, so it is nothing you did. I hope everything comes back normal.

((((((((((HUGS))))))))))))
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  #13  
August 13th, 2009, 07:37 AM
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I'm so sorry you're having to go through all of this! Hopefully it won't be anything serious. I'll be thinking of you and Drake!
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  #14  
August 13th, 2009, 07:54 AM
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Quote:
Originally Posted by I Love Harrison Boo View Post
I'm so sorry Nikki that Drake is not gaining weight...but praise God he doesn't seem to act as though he feels bad....my Harrison was like this...even if he had the worst ear infection he was happy and playing....if he didn't get fevers with them I'd never know he had them. Drake is in my prayers. You are right though, life isn't fair. I did and do all the "wrong" things I guess and my kids have been pretty healthy. It just goes to show that no matter what we do there is no rhyme or reason as to why and how things happen with our little ones.

By the way -how is sleep training going? I'm fascinated by sleep training. I've already started with Nora. She goes down for bed slightly awake and also goes back down after her night time feeding slightly awake. She's already putting herself to sleep without any crying just a little bit of night noises. I'm so excited!
Sleep training has been fine, he sleeps about 12 hours at night. He will wake up a time or two, and we usually just let him fuss himself back to sleep. If really loses it, we go in and get him. It's really nice on those nights when he doesn't wake up!

And the decisions you make for your children aren't "wrong". They are very right, for your family. Just as mine are "right" for my family. You should check out my blog, it's been quite controversial lately. Apparently a reader (old friend from high school), believes my attempts to share my opinion on what my family does means I'm calling her a bad Mom. Drama-rama!
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  #15  
August 13th, 2009, 08:03 AM
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I know how stressful it is having a weight issue with your baby. Conner lost a pound between his 2 month and 4 month appointment...and the week before we took him back for his weight check was one of the most nerve wracking of my life. I'm so sorry you guys are going through this and I'm keeping all of you in my prayers and sending good thoughts your way. I hope it turns out to be nothing!
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  #16  
August 13th, 2009, 08:19 AM
CandaceDianne's Avatar Lilyan's Mommy
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I will keep you all in my thoughts and prayers!!
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  #17  
August 13th, 2009, 08:19 AM
IamMom's Avatar Mega Super Mommy
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Quote:
Originally Posted by niknok View Post
Sleep training has been fine, he sleeps about 12 hours at night. He will wake up a time or two, and we usually just let him fuss himself back to sleep. If really loses it, we go in and get him. It's really nice on those nights when he doesn't wake up!

And the decisions you make for your children aren't "wrong". They are very right, for your family. Just as mine are "right" for my family. You should check out my blog, it's been quite controversial lately. Apparently a reader (old friend from high school), believes my attempts to share my opinion on what my family does means I'm calling her a bad Mom. Drama-rama!
Cool on the sleeping thing! That's so exciting....I keep trying to tell my friend that she can even sleep train her five year old but she keeps saying "he'll NEVER go to bed earlier and in his own bed"....ahh she has so much to learn! That is too bad your friend is causing drama over your opinions and decisions. I agree with you about choices though totally and I was just kinda making fun of myself a little bit for my "wrong" decisions, and calling them wrong but I certainly feel the way you feel - each family makes the decisions that are "right" for them. I probably should be more diligent in some of the things regarding my children's health and safety but so far so good! I am quite proud of myself for buying all new BPA free bottles for Nora...I never thought I'd get sucked into it...my husband thinks its ridiculous but I stood my ground!!!
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  #18  
August 13th, 2009, 08:22 AM
*Anna*'s Avatar Platinum Supermommy
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Hugs Nikki!!!!!
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  #19  
August 13th, 2009, 08:51 AM
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Oh, sweetie, I'm so sorry. I know exactly how you feel when you talk about seeing the letters "FTT" - it absolutely broke my heart, too. For me, it might as well have read: "Failure to mother properly".

I know you and DH are both in the medical field, but if you have ANY questions about the tests that will be run, please let me know. Or if you just need a shoulder to vent on, cry on, and want to talk to someone who has been there, please do not hesitate to PM me, I'm more than happy to pass along my phone number. *big hugs*
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  #20  
August 16th, 2009, 07:11 AM
..Penelope..'s Avatar Platinum Supermommy
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I'm sorry that you're going through this, Nikki. You and Drake are in my T&P. Please KUP!
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