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Mega Super Mommy
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Join Date: Apr 2008
Location: Massachusetts
Posts: 4,969
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For about 10 years or so I have had so many health "issues" that my mom seriously called me a hypochondriac... she basically told me I was looking for attention. Well I made an appt with the NP in my office (I work for a Rheumatologists office) for today.. and I finally have an answer to prove I wasnt just looking for attention. Its a hyper-sensitivity to pretty much everything.. pain, light, sounds.. its also known as Fibromyalgia.. and I am torn. On one side Im relieved because I actually have a diagnoses for pretty much EVERYTHING in my medical past (other than the PCOS and Infertility) on the other side this is a huge blow to my self esteem and optimism.. Fibro isnt something that is cured, but rather its managed.. something I have to live with for the rest of my life. The NP and I are going to manage it without meds and hope for the best. She is completely on board with waiting until the last possible moment (if ever) to go on meds!
Rant over.. thanks for "listening"
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Mega Super Mommy
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Join Date: Jul 2006
Location: New Zealand
Posts: 4,882
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My goodness - I've never heard of that! I'm so glad you finally have some answers and can start working out ways to manage this and get on with your life. Good luck, hon!
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~ Tasha ~
 
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Platinum Supermommy
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Join Date: Oct 2007
Location: San Diego, CA
Posts: 6,194
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My boss has Fibro and her doctors have found a way for her to manage it really well, to the point where it doesn't have a negative affect on her daily life anymore. I hope they get a solution figured out for you quickly.
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Ian, Morgan and Isabella!
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Join Date: Mar 2008
Location: Hillsboro, Oregon
Posts: 6,244
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thats sad that your mom never helped out  But yay for getting answers!! Thats great that you can manage it without meds!! Could this be a possible reason for the infertility (ontop of PCOS?)
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~Momma to 3 munchkins~
~Ian Michael, 6~
~Morgan Alexis, 5~
~Isabella Joy, 1~
~Owned by a 2009 Friesian Sport Horse Filly named Calypso~
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Mega Super Mommy
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Join Date: Apr 2008
Location: Massachusetts
Posts: 4,969
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thanks ladies! Not that she thinks Beth.. When my mom called to find out how the appt went I told her she owed me an apology for all the years of hurt that she made me feel. She said sorry and now understands it's something real.
Tasha it's basically a painful condition that can affect joints, muscles, can cause depression and other mood disorders. Had all my other drs in my life communicated with each other it would have been found out years ago. Between GI issues, pain issues with all my joints/muscles... It's going to be a long haul but at least now I can begin it!
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Platinum Supermommy
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Join Date: Jan 2008
Location: Depends on the day....Earth :D
Posts: 28,954
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glad you have an answer, sorry its not a better one
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Platinum Supermommy
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Join Date: Apr 2007
Location: Barbados
Posts: 18,988
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I'm sorry about the results but I think it's good that you got some answers and can begin a process to manage it.
I am also sorry about your mom's reactions when you were a child. It broke my heart to read that. It's good that she was able to admit her wrong and apologize.
(((HUGS)))
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Thank you Helen for my beautiful siggy!
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Platinum Supermommy
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Join Date: Jun 2007
Location: Louisiana
Posts: 8,090
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Glad you have an answer.. I hope you and your Dr. can figure out some way to manage it for you!
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Aimee wife to Jeremiah mommy to Adeline Louise
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Platinum Supermommy
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Join Date: Oct 2007
Posts: 8,102
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what a relief it must be to know whats going on......but it does sound kind of overwhelming *hugs* i hope you are managing it well in no time!
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Mega Super Mommy
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Join Date: Aug 2007
Location: Southern Germany
Posts: 4,229
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I'm so sorry, but am glad that finally someone took you seriously and now you can be on the road to management. I have ankylosing spondylitis, which I'm sure you know all about if you work for a rheumatology clinic. I went a long time in serious pain, and had nearly every family member and a good handful of doctors basically say I was faking or at least being a drama queen. So I know its really hard when your own family doesn't take you serious.
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Platinum Supermommy
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Join Date: Apr 2008
Location: St. Louis, MO
Posts: 14,102
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Uhhhh! I typed out a long response yesterday and then the boards went down again (or whatever its doing) and it was lost!
Anywhoo...ill make it short and sweet this time. My aunt has fibromyalgia and im not gonna lie up until a few months ago her life was spent just dealing with the pain and trying to find the right combination of meds. BUT she is not the best example because she has Lupus as well. Anyway, a few months ago her Dr finally found the right combo of meds and she has been living life like never before!! Normally she is either limping or complaining of some other type of pain, but I havent seen her do either in MONTHS! Its like she's a new person! So I hope your Dr can find the right meds for you when your ready to start trying meds!
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Cycle #1-9 - All Natural....5BFN's, 4BFP's (all ended in miscarriage) Cycle #10-11 - Met with first RE, diagnosed with heterzygeous MTHFR mutation & slightly low SA on all counts. -BFN, Cycle #12 - First IUI+Trigger - BFN, Cycle #13 - BFN Cycle #14-15 - Met with new RE, diagnosed with a blocked right tube that previous RE completely overlooked or didnt care to mention. Soy (120mg) - BFN Cycle #16 - Clomid (100mg) - BFN, Cycle #17 - Clomid (100mg)+Trigger+IUI - BFN Cycle #18 - Acupuncture+Clomid (100mg) - BFN Cycle #19-27 - 2 Soy (160mg) cycles, the rest all natural also 30lbs lost!! - BFN's Cycle #28 - New RE is GREAT! Put on bcp 7/6/11, Lap surgery 8/1/11- Tubal cyst (5cm) found and removed, Uterine Septum removed, and Stage II-III endo removed. Cycle #29 - All Natural - BFN, Cycle #30 - All Natural - BFN, Cycle#31 - All Natural - BFN, DONE TTC FOR NOW
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Mega Super Mommy
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Join Date: Apr 2008
Location: Massachusetts
Posts: 4,969
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Thanks ladies!
Jessie - I can only imagine the pain youre in. I know all about all those things now because of where I work.
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Platinum Supermommy
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Join Date: May 2005
Location: NJ
Posts: 10,429
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I'm glad you finally have a diagnosis and are on the road to feeling better!
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Mamma to Mia
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Join Date: Feb 2007
Location: Grimsby, England
Posts: 19,304
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Im glad you finally got some answers hun x
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Molly Ann born Feb 13th 2012 weighing 6lb1oz
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Platinum Supermommy
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Join Date: Dec 2008
Location: Northern VA
Posts: 7,874
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glad that u have a diagnosis!!! Just like Ash's aunt, if u do have to go on meds I hope that immediately they give u the right set n u can move on living life to its fullest.
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Platinum Supermommy
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Join Date: Feb 2006
Location: Hagerstown, MD
Posts: 23,058
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So glad you know what's up, hun!
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