As many of you probably read on FB yesterday, I will go into Manhattan October 6th to actually begin the brain mapping and other neurologicla functioning tests needed to undergo my Deep Brain Stimulation needed to hopefully, in effect, make it seem like I no longer have dystonia and return a normal life, mostly medication free.
I have talked about it here, thinking it might be December-January before I actually got to get in with Mt. Sinai for the evaluation but everything just lined up yesterday and I am now under 2 months left in my wait. Now I pray my insurance company continues to behave, I don't flare up within the week I'm supposed to go, etc. etc.
As this goes, this is my BEST CHANCE to return to a job, grad school, and all of the things I always planned, and we are NOT going to chance God choosing now to bless the infertile couple will a baby. We will chart to avoid like life depends on it, and in a very REAL WAY, my quality of life DOES.
Now is when all the fears and doubts are creeping in. Because you know when people say, "Oh don't worry, it's not exactly brain surgery?" OK, well, IT IS! I know things will be fine, and before my lung surgeries, I never ONCE worried until I was in the OR and the thought was "Hmm, I'm going to wake up with either 1 or 1.33 lungs." The beauty of being 17 again.
This is insanely awesome news though. I have always wanted to walk through Central Park in the fall under the "movie bridge" and I'm so going do it and that's what takes the worry away