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  #1  
August 7th, 2010, 08:16 AM
Veteran
Join Date: Sep 2007
Location: Buffalo, NY
Posts: 223
As many of you probably read on FB yesterday, I will go into Manhattan October 6th to actually begin the brain mapping and other neurologicla functioning tests needed to undergo my Deep Brain Stimulation needed to hopefully, in effect, make it seem like I no longer have dystonia and return a normal life, mostly medication free.

I have talked about it here, thinking it might be December-January before I actually got to get in with Mt. Sinai for the evaluation but everything just lined up yesterday and I am now under 2 months left in my wait. Now I pray my insurance company continues to behave, I don't flare up within the week I'm supposed to go, etc. etc.

As this goes, this is my BEST CHANCE to return to a job, grad school, and all of the things I always planned, and we are NOT going to chance God choosing now to bless the infertile couple will a baby. We will chart to avoid like life depends on it, and in a very REAL WAY, my quality of life DOES.


Now is when all the fears and doubts are creeping in. Because you know when people say, "Oh don't worry, it's not exactly brain surgery?" OK, well, IT IS! I know things will be fine, and before my lung surgeries, I never ONCE worried until I was in the OR and the thought was "Hmm, I'm going to wake up with either 1 or 1.33 lungs." The beauty of being 17 again.

This is insanely awesome news though. I have always wanted to walk through Central Park in the fall under the "movie bridge" and I'm so going do it and that's what takes the worry away
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  #2  
August 7th, 2010, 08:35 AM
Frozendesire's Avatar Platinum Supermommy
Join Date: Jun 2006
Location: Canada
Posts: 10,199
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Oh wow that's really amazing news!!! I hope the insurance companies behave and you don't have any flare ups during the scheduled time.

Heres to smooth surgery and recovery, and a normal life after!!
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  #3  
August 7th, 2010, 08:53 AM
Platinum Supermommy
Join Date: Mar 2008
Posts: 6,553
I really hope everything goes smoothly for you and your symptoms let up. I know it is probably scary for you, but it will be worth all the anxiety once you are feeling better. Keep us posted, and I hope you share pics of the fall leaves and the movie bridge you are dreaming about.
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  #4  
August 7th, 2010, 09:01 AM
midnight_starr's Avatar Platinum Supermommy
Join Date: Jun 2007
Location: Louisiana
Posts: 8,090
That is amazing news hon!!!!!
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  #5  
August 7th, 2010, 09:59 AM
JediRach's Avatar Platinum Supermommy
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Location: San Diego, CA
Posts: 6,194
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Happy to hear you are getting things sorted out. Amazing news!
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  #6  
August 7th, 2010, 02:51 PM
~*Bethy*~'s Avatar Ian, Morgan and Isabella!
Join Date: Mar 2008
Location: Hillsboro, Oregon
Posts: 6,244
Im just so happy for you As I stated last night, Im here for you, any hour of the day! (no it wasnt the tequilla talkin ) T&P continue to be passed your way. Im glad things in the marriage department are looking up too its all falling into place!!!
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  #7  
August 7th, 2010, 04:00 PM
alicenwonderland's Avatar Platinum Supermommy
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Location: Rochester NY
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Hoping everything goes smooth so you can have your surgery. It would be wonderful if your symptoms are under control when you finally fall pregnant!
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  #8  
August 7th, 2010, 06:00 PM
*Mrs.J.2011*'s Avatar Mega Super Mommy
Join Date: Apr 2008
Location: Massachusetts
Posts: 4,969
This is such great news Michelle!! I hope everything goes exactly as planned!
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  #9  
August 7th, 2010, 06:44 PM
Platinum Supermommy
Join Date: Oct 2007
Posts: 8,102
what wonderful news!!! KUP on all the details!
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  #10  
August 7th, 2010, 08:12 PM
LadyCoconut's Avatar Super Moderator
Join Date: Sep 2005
Location: Georgia
Posts: 33,082
that's awesome!
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  #11  
August 8th, 2010, 05:54 AM
~Caroline~'s Avatar Platinum Supermommy
Join Date: Sep 2007
Location: Montreal
Posts: 6,333
That's great news! I hope everything will go well
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  #12  
August 9th, 2010, 06:45 AM
Mars's Avatar Platinum Supermommy
Join Date: Apr 2007
Location: Barbados
Posts: 18,988
That is awesome news. I hope that everything goes well.
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