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People make me so mad sometimes!


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  #1  
September 13th, 2008, 11:58 AM
LadyOrion's Avatar Platinum Supermommy
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I tried talking to one of our friends about our concerns with Tasiya and she pretty much blew off everything I said. She even told me not to worry about it and she will start talking on her own when she is ready. What if she can't? What is there is something wrong and she suffers at school because I just "didn't worry about it"? She just about rolled her eyes at me when I motioned the possibility of apraxia. Then tried to tell me there was no such thing and they just use that as a name for kids who have a normal speech delay! WTH is wrong with ppl sometimes?
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  #2  
September 13th, 2008, 08:35 PM
Chunky Monkey's Avatar Platinum Supermommy
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I am so sorry sweetie. People can be so mean and cruel when they themselves don't know a thing about the situation themselves. Sometimes it's easier for them to blow it off than to try and come up with something to say about it.

Here is something that has happened to us so you can see you are not alone:

My MIL has been there through it all with us. Speech therapy, developmental pediatrician, neurologist, etc. She has been VERY involved so she knows what is going on. Of course it helps her and I have an excellent relationship.
My SIL on the other hand...Scott's sister...has no experience with kids really except for occasionally seeing her friends kids. She is in her 30's and has no kids, nor does she want kids. But she told my MIL that Scott & I are "bad" parents because Cody is speech delayed, not potty trained, in speech & OT through school, etc. My MIL flatly told Kelly this is NOT our faults and she has no right to say a thing since she is not even around Cody except at Thanksgiving and Christmas. But I just told my MIL it doesn't bother me, as it shows my SIL's ignorance in this.

I hope you find comfort in what I just told you. Keep your chin up mama...you are doing a great job!
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  #3  
September 13th, 2008, 09:23 PM
LadyOrion's Avatar Platinum Supermommy
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Thanks, That does make me feel better. I know I am doing the right thing. I don't want to disregard Tasiya's speech delay as nothing and regret it later if it is a big problem.

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  #4  
September 13th, 2008, 11:06 PM
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Exactly! It could be simply a delay and nothing to worry about. Or something more serious. Apraxia is defined as a speech delay caused by some sort of injury to the brain. And no I am not saying someone dropped her or anything. It could be as simple as lack of oxygen during delivery. Unless there is some obvious injury, sometimes it's a mystery. The doctors who evaluated Cody thinks its from the oxygen he received in the NICU due to a pneumo medial stinum (a.k.a. air bubble around the heart) and pulmonary hypertension. But what you are doing is trying to find the extent of her delay. And I got all sorts of comments and people saying he would simply "grow out of it." But I did what I felt in my heart was right for Cody, as you are doing for Tasiya. Don't let people like that get you down.
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  #5  
September 14th, 2008, 09:21 AM
LadyOrion's Avatar Platinum Supermommy
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Tasiya has not had any injuries that I know of and seemed very healthy as a newborn. The therapist thinks if she does have apraxia it would be developmental apraxia and that is more of a genetic neurological disorder. Also when I was pregnant with her I was told she only had a two vessel cord. I am wondering if the two are related. I guess we will just have to wait and see what her report says. I am hoping for good news.
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  #6  
September 14th, 2008, 09:41 AM
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It is quite possible for that to be the reason. Or genetics. All this stuff is still new to them with the diagnosis. Scott was soooo scared to have him evaluated because he was afraid Cody would be labeled as simply "reatarded" the way they were labeled when WE were kids. But no one has even used that term in all of this.
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  #7  
September 14th, 2008, 10:38 AM
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Quote:
It is quite possible for that to be the reason. Or genetics. All this stuff is still new to them with the diagnosis. Scott was soooo scared to have him evaluated because he was afraid Cody would be labeled as simply "reatarded" the way they were labeled when WE were kids. But no one has even used that term in all of this.[/b]

Yeah my DH freaked out at first too. He mellowed out after a few days.

Anyways "retard" is just another word for "delay" or "hindering" of progress. It doesn't mean the end. It's just a slow beginning. With all the right help, I have faith that everything will be alright in the end.
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  #8  
September 14th, 2008, 10:51 AM
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It will all work out. Again you are doing what you feel is right in your heart for your daughter and don't let anyone tell you otherwise. People criticize what they don't know about.
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  #9  
September 14th, 2008, 05:51 PM
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I am sorry hun!

My mom said the same thing to my Grandma about my youngest brother when he was 2.5 years old and she said the same thing, not to worry he'll grow out of it. I think it had a lot to do with the time my Grandma lived in. I am sure it was never a thing/big deal back in the day. But, my mom did get my brother checked out when he turned 3.5 years old and he was delayed in a lot of areas. That was hard for my grandma to see as my grandma lived in NJ and my mom in NC.

I feel that there is no harm in getting your child checked out. It can be more good than harm! Go with your mother's instinct!
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  #10  
October 15th, 2008, 11:37 PM
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Hi, new to this post (didn't know it existed!!!) but wanted to let you know that I could have written your post! My son is almost 2.5 yrs old and has NO words. None. No baba, no mama, nothing. He mostly keeps his mouth closed and grunts or says things like um-ha, but with mouth closed. He has no other delays and his receptive is very high. He has been in speech therapy since he was 18 months and his speech therapist has said from day one she thinks it is apraxia. Anyway, I get SOOOOO tired of hearing friends, family, and even strangers at Wal-mart telling me, "oh, my son was a late talker... there is nothing wrong with him. He'll talk when he is ready. He has older brothers, he doesn't need to talk...." etc, etc... It is so frustrating how everyone else thinks they are an expert on my kids speech and I guess they think the specialists who have masters degrees are wrong. We go through enough emotional turmoil without every idiot throwing their two cents in!!!
Sorry, just had to vent!!!!

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  #11  
October 16th, 2008, 06:19 AM
HunterandLandonsmom's Avatar Super Mommy
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I totally feel ya. It is like people think they know more than the experts. I get the strangest looks sometimes when i tell people he is speech delayed...like why would you test him so young. I think people are just used to speech delays not being addressed until Elem. school. EXPERTS have come to realize early intervention is key(with many things)... my husband was not convienced our son was speech delayed until a couple months ago and he had been in speech theraphy for over 6 months and he hated when i let people know he was speech delayed...he kept asking why i had to bring it up...i'm like so other people that are watching him know or that kids he is playing with parents know...it is kind of important...
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