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  #1  
November 12th, 2008, 10:59 AM
RainyDay's Avatar Platinum Supermommy
Join Date: Apr 2007
Location: Cleveland, OH
Posts: 12,488
Hi, I'm Ranee (sounds like Rainy), and DS Sean has a speech disorder. This is his story:

Sean hit all of his developmental milestones, even babbled on time. But he never really progressed beyond that. At his 18 mo check-up we discussed it, and the ped said he may be a late talker like I was (I didn't talk till age 2). She suggested to wait until he was 2 and then refer for speech therapy if he still wasn't talking. In the meantime, she suggested having his hearing tested to rule that out. His hearing was within normal thresholds. He did have a history of ear infections and a ruptured ear drum, but we knew he could hear just fine.

At 2 yrs we had him evaluated by a SLP and she recommended weekly therapy. Problem is our insurance wouldn't cover it and we were stuck with a $316 bill for the evaluation. So I contacted Help Me Grow and started that process in November 2007. By the time we met with everyone we needed to see to make sure he qualified for services it was the new year. Then there was a waiting list for speech therapy and he didn't see anyone until March. He was only getting speech therapy once/month. In the summer it changed to 2x/month. Then, the regular therapist for our area came back from maternity leave and Sean started seeing her. She said right away that he needed intensive, weekly therapy, and scheduled us every week until his 3rd birthday.

He made a lot of progress with her, and she is confident that he has developmental speech apraxia. She really worked on his oral-motor skills and by his 3rd b-day he actually had a repertiore of sounds and begin to put short words together, like "me."

As of Oct 21, his 3rd b-day, he transitioned into the public school special ed preschool program. He goes everyday for 2.5 hours, and gets ST and OT once a week, and the teacher works with him every week. She is excited about the improvement he's made in just a few weeks.

So that's our story, sorry it's so long. Sean also has some sensory issues and may be on the autism spectrum, but none of the specialists we've seen really want to go there just yet. They feel like his lack of speech is a big part of his delays in other areas, like pretend play. But he definitely has his quirks We are going to take him for official testing for autism, and look into private speech therapy. His ped put in a diagnosis code for apraxia so our insurance will cover 10 visits, it's better than nothing. I guess the private SLP will give the "official" apraxia diagnosis, but he is pretty much a textbook case.

Looking forward to getting to know all of you and your LO's.
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  #2  
November 14th, 2008, 05:49 AM
HunterandLandonsmom's Avatar Super Mommy
Join Date: Sep 2008
Location: Bellevue/Omaha, NE
Posts: 570
Welcome.... seems like you all are taking the right steps forward. I know speech theraphy has helped my 3 year old Hunter sooooooooo much
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  #3  
November 14th, 2008, 09:21 AM
LadyTkachenko's Avatar *~GreenTeamFeb2015~*
Join Date: Jan 2006
Location: WA
Posts: 13,608
Welcome Ranee! That's awesome therapy and school seems to be helping your son. Did it take them this whole year to get a diagnoses? My daughter who just turned 2 in September started therapy last month. Her therapist also suspects Dev. apraxia and it is really frustrating not knowing yet. I am glad you joined us and I look forward to getting to know you and your son.
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  #4  
November 14th, 2008, 11:54 AM
RainyDay's Avatar Platinum Supermommy
Join Date: Apr 2007
Location: Cleveland, OH
Posts: 12,488
Quote:
Welcome Ranee! That's awesome therapy and school seems to be helping your son. Did it take them this whole year to get a diagnoses? My daughter who just turned 2 in September started therapy last month. Her therapist also suspects Dev. apraxia and it is really frustrating not knowing yet. I am glad you joined us and I look forward to getting to know you and your son.[/b]
It actually didn't take very long to get the diagnosis. The first SLP he worked with through the county didn't work with him very often because she was covering for the one on leave. She only worked with him 1x/month. When the other SLP came back from maternity leave in July she immediately knew he needed more. She worked with him weekly and by the 3rd visit I mentioned apraxia and she said she was pretty sure that's what it was.

She said diagnosing is kind of a hindsight thing. She basically said you do the therapy and see how they respond. With some kids they pick up the techniques and it really works for them, and then you know that it was just a developmental delay. But she could see with Sean after just a few visits how his brain was working, he just couldn't seems to get his mouth and voice coordinated enough to produce the sounds. Even now he is only starting to build very simple words. He has mama, dada, me, we, more (it's hard for him to produce this word), and bye (ba). And a few other random vowel and consonant sounds. It's a constant struggle for him

I hope therapy works for your little one and that it turns out to be just a delay and not apraxia. Believe me, I know exactly how frustrating it is!
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