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Hearing loss (New here)


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  #1  
November 24th, 2008, 04:56 PM
Bluebayou's Avatar Mega Super Mommy
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Location: Toronto, Ontario
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Hi all, I am new to the hearing and speech board. Ill introduce myself. My name is Amalia. Im 30 years old. In june I gave birth to a baby boy at 25 weeks gestation. He had and still has chronic ling disease. He is now home on O2.

I just got back from the hospital with the baby and he had a hearing test which lasted all day. They hooked him up on these machines and when it was over the audiologist told me that he did not respond to low or high frequencies. She said that this could mean a complete or partial hearing loss. I asked her if he was deaf and she said she cant answer that question untill we have another test whch will be on the 5th of December. Im really scared. I am going to go crazy waiting until next week to do another test.

She said that if the tests come out the same next week they will send him for an MRI and to an ear specialist who will determine if he has no hearing at all or if its something that can be corrected. She said the chances of it being correctable depend on if he is totally deaf, if he is there is probably nothing we can do.

this is all seems so strange to me. I can sometimes swear that he can hear me. When I close the door too loud he jumps. When I talk to him in my special baby language he starts smiling. I cant believe that he has this hearing problem??? I just feel that he does respond to me when I talk to him. Maybe I am just grasping at straws, i dont know

Has anyone experienced this? I am soooooooooooooooooooooo scared
--------------------------------------------------------------------------------------------

Update:

I went to the second appointment with the same results. They think he may be completely deaf, on a positive note they said his ear drum is ok which means he may be a candidate for those implants or a hearing aid depending on the severity of the loss...
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  #2  
November 24th, 2008, 05:26 PM
quietsong's Avatar Just Another Slacker Mom
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Hon, I responded in the Preemie/NICU board, but I wanted to offer you some more hugs. Also, if he is jumping when you close the door loudly, that would indicate he does have a bit of hearing there. Does he do it dependably - ie, can you reproduce it on demand? Danny has never, ever jumped to a loud noise like that. As for talking to him, I wish I could say that was a good sign, but Danny had everyone fooled - including the PT and nurses at the NICU. There is so much more than sound that babies get some being talked to. He feels your nearness, sees your expressions and that you are interacting with him. Whatever you do, whether he has lost his hearing or not, KEEP DOING THAT. It's exactly what he needs either way.

(((hugs)))
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  #3  
November 25th, 2008, 05:08 AM
Dibble's Avatar Mega Super Mommy
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It sounds like he has some hearing if he jumps when you close the door loudly. Let us know what you find out on the 5th.
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  #4  
November 25th, 2008, 07:12 AM
HunterandLandonsmom's Avatar Super Mommy
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My son just has speech issues and not hearing, so i can't empathize exactly...but i would think reacting to doors closing and stuff is a good sign. Let us know how everything goes
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  #5  
November 25th, 2008, 09:28 AM
RainyDay's Avatar Platinum Supermommy
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Welcome I don't have any knowledge about hearing loss, but I agree that the response to loud noises makes it seem like he doesn't have total loss. Good luck at your follow-up appt.
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  #6  
November 30th, 2008, 06:45 PM
Member
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Posts: 11
Quote:
Hi all, I am new to the hearing and speech board. Ill introduce myself. My name is Amalia. Im 30 years old. In june I gave birth to a baby boy at 25 weeks gestation. He had and still has chronic ling disease. He is now home on O2.

I just got back from the hospital with the baby and he had a hearing test which lasted all day. They hooked him up on these machines and when it was over the audiologist told me that he did not respond to low or high frequencies. She said that this could mean a complete or partial hearing loss. I asked her if he was deaf and she said she cant answer that question untill we have another test whch will be on the 5th of December. Im really scared. I am going to go crazy waiting until next week to do another test.

She said that if the tests come out the same next week they will send him for an MRI and to an ear specialist who will determine if he has no hearing at all or if its something that can be corrected. She said the chances of it being correctable depend on if he is totally deaf, if he is there is probably nothing we can do.

this is all seems so strange to me. I can sometimes swear that he can hear me. When I close the door too loud he jumps. When I talk to him in my special baby language he starts smiling. I cant believe that he has this hearing problem??? I just feel that he does respond to me when I talk to him. Maybe I am just grasping at straws, i dont know

Has anyone experienced this? I am soooooooooooooooooooooo scared [/b]
Hi! First, big hugs! Second, Breathe!!

I am a hard of hearing adult. Yes, you are facing a scary diagnosis, you are the mommy of a 25 weeker, you have a fighter on your hands! This is just another fight, your son already has fought so much in his young life. I am a 32 week premie that is now almost 30 years old. I am hard of hearing due to gentamycin given at birth resulting in a sensorineural hearing loss. The options for me at birth were to die, to be hard of hearing or to die of kidney failure if I didn't receive a kidney transplant by the age of 4. When faced with those possibilities my hearing loss is a minor obstacle. My parents had a healthy child. Hearing loss does not affect a child's health or intelligence only that we acquire language differently.

Also, you are getting this diagnosis extremly early in his life, you have time to work with him to acquire language, research your options and make the decisions that are best for your family. I highly encourage you to talk with the local deaf school in your area, ask to visit their classrooms, research deaf groups in your area, meet deaf adults and see their lives.

Grieve the loss of the child you thought you would have, a child with perfect hearing and embrace the wonderful fighter you have.

If you have any additional questions or just need to vent about this situation please PM me!

Once again Hugs! You can do this!
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  #7  
December 2nd, 2008, 09:10 PM
HailandNevansmom's Avatar Mega Super Mommy
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awwww your baby is amazing !!! <3 hugs for him . <3

My bf has complete hearing loss... was due to his parents genetics. he is still such a wonderful and smart person.

Dont wrry if this is the case.. it will bea lil challenging, but not less normal than anyone else.

I wrry a bit about our baby being deaf like him ( its not likely according to drs to have same thing ) but i still worry, but then i think ... even if that does happen, its still our precious lil one.

Keep positive and head up .. and my thoughts are with u.
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  #8  
December 30th, 2008, 01:01 PM
ZaydensMomma's Avatar Aaron Nicole
Join Date: Nov 2006
Location: Louisiana
Posts: 16,443
Quote:
When I close the door too loud he jumps.[/b]
The reason why he jump is because he is responding to the vibration he felt when the door shut. I jump when someone slams the door cuz I can feel the vibration. It does not indicate hearing the slamming.

Quote:
When I talk to him in my special baby language he starts smiling. I cant believe that he has this hearing problem??? I just feel that he does respond to me when I talk to him.[/b]
That is because he is responding to your facial expression and signs. Using sign language increases their responses to the parents. Deaf babies respond to signs than talking. Click here


Quote:
Update:

I went to the second appointment with the same results. They think he may be completely deaf, on a positive note they said his ear drum is ok which means he may be a candidate for those implants or a hearing aid depending on the severity of the loss...[/b]
In order to receive cochlear implant, the child has to be profoundly deaf. I have CI and do not use it due to several reasons. I highly encourage you to check out deaf school and ask them about deaf schools, socialization, personal growth and compare to mainstream school.
I found really great 2 links I think you should read before you make any decisions about whether using CI or not.
Blog about CI
National Association of the Deaf

I'm Deaf and uses ASL as my native language. I have no problems understanding everything and I use gestures and lipread with hearing people. It's all about education.

Good luck with your decision and hope everything works out!
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  #9  
December 30th, 2008, 01:40 PM
quietsong's Avatar Just Another Slacker Mom
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First and foremost, I'm sorry that he is deaf. I know what a blow this can be to a parent! However, please, please keep in mind that there is NOTHING a deaf person can do that a hearing person cannot, other than hear!

I do strongly encourage you to research cochlear implants if he is a candidate. It is not a decision that should be made lightly! There are two very strong voiced sides to the issue, and unfortunately a lot of misinformation on both sides as well. Since Aaron offered you a few websites that speak against cochlear implants for babies, I'd like to offer a few sites on the opposite side of the issue.
Pediatric CI Circle
Cochlear Implant Online

Also, a website I love that includes blogs from people on both sides, those who have gone with cochlear implants and those who have gone with ASL.
http://www.deafvillage.com/

It is very true that cochlear implants do not cure or fix deafness - if he has a profound loss, he will always be deaf, but you will learn to love that part of him along with everything else no matter what route you choose! These days, I love to talk to people about my son's deafness, because it is a part of him and I love him. I absolutely encourage you to get in touch with any local deaf schools near you, and any opportunities early intervention offer you. The more you know, the better decisions you can make in the coming weeks. Huge, huge hugs to you! It is a roller coaster, and will seem like so much so quickly at first, but you'll get through ... I promise!

Oh! And my biggest piece of advice: talk to your baby. Seriously! Talk to him all the time. Sign, and talk, and love on him no different from when you thought he could hear you. And never, ever feel silly for it.

It has been a few days since you editted with your update, I'm sorry I didn't notice sooner that there was an update! How have things been going since then?
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