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Hemangioma help


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  • 2 Post By peace.love.audrey

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  #1  
February 2nd, 2012, 04:52 AM
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Join Date: May 2009
Location: MI
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Does anyone's LO have a hemangioma? Did you do any treatment for it. My Madison has a large one on her neck and it is pushing up on her ear. The dermatologist wants to treat it with propranolol, a medication usually used for heart issues but now being used for hemangiomas. I am really worried about it. First she has to go get an MRI of it to check the vascular structures of it, than we go to a ENT to check to see if it's affecting her ear and throat, and then to a cardiologist that will monitor the medication. Just worried and was wondering if anyone has been there with their LO.
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  #2  
February 2nd, 2012, 06:28 PM
Rae-of-Sunshine's Avatar Mega Super Mommy
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I didn't even know what one was (I looked it up). Hopefully someone else can help you though... and I hope everything goes well with whatever you decide!
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  #3  
February 3rd, 2012, 11:17 AM
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Last edited by tiffaknee; February 27th, 2013 at 03:34 PM.
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  #4  
February 3rd, 2012, 04:25 PM
dalynnrmc's Avatar pronounced (day-lynn)
Join Date: Feb 2010
Location: near Waco, TX
Posts: 3,305
I'm familiar with what you're talking about because one of my friends whose daughter is just younger than my 8yo had a very, very large one on her forehead that they eventually deemed a health risk of some sort and removed. (She was happy because before that they'd told her that her state insurance wouldn't pay to get it removed even though it was HUGE and right in the middle of the forehead, because it was considered cosmetic. Sure, it's cosmetic, but sometimes for our little girls a few costmetics are needed!!)


Anyway, I just know what you mean and am not familiar at all with the meds or anything. Keep asking questions and demanding answers - if you aren't comfortable with something then make them help you GET comfortable or make them change it until you ARE. They work for you.

Hugs!
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  #5  
February 3rd, 2012, 09:24 PM
peace.love.audrey's Avatar Twins? Pinch me!
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Location: Cactus Country
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I'm totally lurking here but my daughter took propanolol from 3 months to 9 months for a large hemangioma on the palm of her hand. She went to the Derm every month just to check her blood pressure but she never had any issues (I think they said it could make her sleepy but I never noticed anything significant). Propanolol has been around for 50 years, so you can find comfort in the fact that it's not some new medication on the market. I had serious reservations about putting my infant on a beta blocker but now that the hemangioma is pretty much nonexistent, I am more than happy with my decision to put her on it.

Please PM me if you want to talk or have any questions.
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  #6  
March 1st, 2012, 12:57 PM
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