Log In Sign Up

For those with older kids


Welcome to the JustMommies Message Boards.

We pride ourselves on having the friendliest and most welcoming forums for moms and moms to be! Please take a moment and register for free so you can be a part of our growing community of mothers. If you have any problems registering please drop an email to boards@justmommies.com.

Our community is moderated by our moderation team so you won't see spam or offensive messages posted on our forums. Each of our message boards is hosted by JustMommies hosts, whose names are listed at the top each board. We hope you find our message boards friendly, helpful, and fun to be on!

Reply Post New Topic
  Subscribe To Children with Heart Conditions LinkBack Topic Tools Search this Topic Display Modes
  #1  
October 2nd, 2008, 08:55 AM
fiefer87's Avatar Mega Super Mommy
Join Date: Aug 2007
Location: Near Buffalo, NY
Posts: 4,336
How do they deal with their diagnosis?

Do they understand what is wrong?

Because of some of their limitations, do the other kids treat them differently?
__________________
<div align="center">Thanks Alison's Mommy, SillyMama, Katarina and samylaine for my blinkies.</div>
Reply With Quote
  #2  
October 3rd, 2008, 11:35 AM
Platinum Supermommy
Join Date: Oct 2004
Location: *queen city* of North Carolina
Posts: 9,497
Hailey is only 2, but I figured i'd answer anyways because we're starting to explain it to her.

She had her cardio appt in April [20 months]. We talked about what would happen - the doctor is going to put stickers on her belly, and listen to it with a stethoscope, and use the ultrasound machine to look at her heart. She has been telling people "my heart hurts." She thinks it is really cool. She doesn't understand fully by any means what is wrong, nor can I expect her to. She does I think realize that it "hurts." Not physically, like if she were to fall and scrap a knee, but that something is not right. She will go again in Dec or Jan, and because she loves to play doctor we pretend to go to the cardiologist. She listens to my heart and asks me if mine hurts or her friends. My mom is a nurse, so when she comes over we play with her stethoscope and let her listen to hers and ours. Of course she doesn't understand the "vacuum" sound is the pressure in her valve nor do I expect it.

I thought it was really cool, a girl at our church had a liver transplant soon after birth. She said "I have to take medicine so my body will be nice to it."
__________________
Proud Mommy To My Princess (5)
Watching over us -- August 2005, March 2010, October 2010, July 2011
Reply With Quote
  #3  
October 3rd, 2008, 01:39 PM
fiefer87's Avatar Mega Super Mommy
Join Date: Aug 2007
Location: Near Buffalo, NY
Posts: 4,336
I know Alexis doesn't really understand what is going on, or if she does, she can't communicate it with us. So, she deals fine with her diagnosis, mostly because she doesn't realize she is different from the other kids. So far most of the other kids deal well with her, but she is still in special ed and obviously the kids in her class have some sort of issues as well. We will have to see how things go as she gets older

Quote:
I thought it was really cool, a girl at our church had a liver transplant soon after birth. She said "I have to take medicine so my body will be nice to it."[/b]
I love this statement, so true and said perfectly so a small child can understand what is going on.
__________________
<div align="center">Thanks Alison's Mommy, SillyMama, Katarina and samylaine for my blinkies.</div>
Reply With Quote
Reply

Topic Tools Search this Topic
Search this Topic:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off



All times are GMT -7. The time now is 11:54 AM.



Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2014, vBulletin Solutions, Inc.
Search Engine Optimization by vBSEO 3.6.0