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  #1  
February 4th, 2009, 05:39 PM
stacyp's Avatar Mommy to Andrew & Luke
Join Date: Nov 2005
Location: OHIO
Posts: 17,229
If you have any suggestions on things you would like to see on our board please feel free to let me know. I am trying to get some info together & get some stickies started. It may take me a few days or so but bear with me, I promise to get to it.
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  #2  
February 5th, 2009, 04:57 PM
Mega Super Mommy
Join Date: Jul 2008
Location: Carroll Valley, PA
Posts: 3,168
I have some info and links, and blinkies that I'll try to post soon too.

I don't know how the admins choose which board is "spotlighted", but maybe we could request they spotlight our board during CHD Awareness week February7th-14th.
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  #3  
February 5th, 2009, 05:21 PM
stacyp's Avatar Mommy to Andrew & Luke
Join Date: Nov 2005
Location: OHIO
Posts: 17,229
Thanks! I'll see what I can do!
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  #4  
February 5th, 2009, 05:47 PM
stacyp's Avatar Mommy to Andrew & Luke
Join Date: Nov 2005
Location: OHIO
Posts: 17,229
We will be the spotlighted board next week. That was an excellent idea Janel.
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  #5  
February 6th, 2009, 08:27 PM
Mega Super Mommy
Join Date: Jul 2008
Location: Carroll Valley, PA
Posts: 3,168
Awesome!!!

I'm going to start posting CHD stuff in this post, and you can repost/ copy and sticky it where ever you want

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Cardiovascular diseases, including stroke, are our nation's No. 1 killer. To urge Americans to join the battle against these diseases, since 1963 Congress has required the president to proclaim February "American Heart Month." (Note this is not "Heart Month" or "National Heart Month.")

The American Heart Association works with the administration to draft and sign this annual proclamation.


CHD Awareness Week is February 7th-14th.

Congenital Heart Disease is considered to be the most common birth defect, and is a leading cause of birth-defect related deaths worldwide.

Despite the fact that CHD affects millions of families, a relatively small amount of funding is currently available for parent/patient educational services, research, and support.

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Facts about CHD

*Sometimes during early pregnancy, a baby's heart fails to form properly, resulting in structural abnormalities known as Congenital Heart Defects. Although some defects are genetic, in many cases the cause is unknown.

*Although some babies will be diagnosed at birth, sometimes the diagnosis is not made until days, weeks, months, or even years after. In some cases, CHDs are not detected until adolescence or adulthood.

*Some CHDs may not require treatment other than periodic visits to a Pediatric Cardiologist. Others can be treated with medications or repaired with surgery and/or procedures.

*Complex defects may require several surgeries and are never really "cured".

*Many cases of sudden cardiac death in young athletes are caused by undiagnosed CHDs and Childhood Onset Heart Disease.

*It is estimated that more adults than children are living with congenital heart disease, and this population is expected to grow by 5% each year. Yet, many adults with CHD are not receiving adequate ongoing care from trained specialists.

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Parents should be alert to the following symptoms in infancy:

*Tires easily during feeding (i.e. falls asleep before feeding finishes

*Sweating around the head, especially during feeding

*Fast breathing when at rest or sleeping

*Pale or bluish skin color

*Poor weight gain

*Sleeps a lot - not playful or curious for any length of time

*Puffy face, hands, and/or feet

*Often irritable, difficult to console

Some children with CHDs may not have any symptoms until later in childhood. Things to look for include:

*Gets out of breath during play

*Difficulty "keeping up" with playmates

*Tires easily/sleeps a lot

*Change in color during active play or sports (looks pale or has a bluish tint around mouth and nose)

*Frequent colds and respiratory illnesses

*Slow growth and weight gain/poor appetite

*Complains of chest pain and/or heart pounding


If your child has two or more of these symptoms, talk to your pediatrician about a referral to a Pediatric Cardiologist

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For more information on CHD please visit the following sites:

http://www.chdinfo.com
http://www.geocities.com/blankets_with_heart
http://www.bubbasbears4chd.com
http://www.chdfamilies.org
http://www.childrensheartfoundation.org
http://www.clubofhearts.org
http://www.congenitalheartdefects.com
http://www.tchin.org
http://www.kidswithheart.org
http://www.americanheart.org
http://www.littlehearts.org
http://www.mendedhearts.org/mlh/frame-mlh.htm
http://www.pediatricheart.org
http://www.petitiononline.com/chdhelp1/petition.html
http://www.savinglittlehearts.com
http://www.chdquilt.org/index.html
http://babyheartspress.com/poster2.html

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CHD petitions :

http://www.gopetition.com/petitions/media-...ss-for-chd.html (for awareness in the media)

http://www.ipetitions.com/petition/CHDpulseox/ (for requiring routine pulse-ox testing in newborns)
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Request a quilt block in honor of you heart child: http://www.chdquilt.org/index.html

We had one done for Jude when he was a baby, his on quilt #35, row one, block 2
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