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**Cardiac Info & Links**


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  #1  
February 7th, 2009, 09:05 AM
stacyp's Avatar Mommy to Andrew & Luke
Join Date: Nov 2005
Location: OHIO
Posts: 17,229
Please feel free to post any helpful info or links you have on pediatric cardiac conditions.

Here's what I have.....
I will continue to update as I find more info.

Diseases, conditions & treatment
http://www.americanheart.org/presenter.jht...ntifier=3028667



Glossary of cardiac related terms
http://www.cincinnatichildrens.org/health/...ia/glossary.htm

Statistics
http://www.americanheart.org/present...dentifier=4498
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Info provided by momma2jude

Cardiovascular diseases, including stroke, are our nation's No. 1 killer. To urge Americans to join the battle against these diseases, since 1963 Congress has required the president to proclaim February "American Heart Month." (Note this is not "Heart Month" or "National Heart Month.")

The American Heart Association works with the administration to draft and sign this annual proclamation.


CHD Awareness Week is February 7th-14th.

Congenital Heart Disease is considered to be the most common birth defect, and is a leading cause of birth-defect related deaths worldwide.

Despite the fact that CHD affects millions of families, a relatively small amount of funding is currently available for parent/patient educational services, research, and support.

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Facts about CHD

*Sometimes during early pregnancy, a baby's heart fails to form properly, resulting in structural abnormalities known as Congenital Heart Defects. Although some defects are genetic, in many cases the cause is unknown.

*Although some babies will be diagnosed at birth, sometimes the diagnosis is not made until days, weeks, months, or even years after. In some cases, CHDs are not detected until adolescence or adulthood.

*Some CHDs may not require treatment other than periodic visits to a Pediatric Cardiologist. Others can be treated with medications or repaired with surgery and/or procedures.

*Complex defects may require several surgeries and are never really "cured".

*Many cases of sudden cardiac death in young athletes are caused by undiagnosed CHDs and Childhood Onset Heart Disease.

*It is estimated that more adults than children are living with congenital heart disease, and this population is expected to grow by 5% each year. Yet, many adults with CHD are not receiving adequate ongoing care from trained specialists.

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Parents should be alert to the following symptoms in infancy:

*Tires easily during feeding (i.e. falls asleep before feeding finishes

*Sweating around the head, especially during feeding

*Fast breathing when at rest or sleeping

*Pale or bluish skin color

*Poor weight gain

*Sleeps a lot - not playful or curious for any length of time

*Puffy face, hands, and/or feet

*Often irritable, difficult to console

Some children with CHDs may not have any symptoms until later in childhood. Things to look for include:

*Gets out of breath during play

*Difficulty "keeping up" with playmates

*Tires easily/sleeps a lot

*Change in color during active play or sports (looks pale or has a bluish tint around mouth and nose)

*Frequent colds and respiratory illnesses

*Slow growth and weight gain/poor appetite

*Complains of chest pain and/or heart pounding


If your child has two or more of these symptoms, talk to your pediatrician about a referral to a Pediatric Cardiologist

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For more information on CHD please visit the following sites:

http://www.chdinfo.com
http://www.geocities.com/blankets_with_heart
http://www.bubbasbears4chd.com
http://www.chdfamilies.org
http://www.childrensheartfoundation.org
http://www.clubofhearts.org
http://www.congenitalheartdefects.com
http://www.tchin.org
http://www.kidswithheart.org
http://www.americanheart.org
http://www.littlehearts.org
http://www.mendedhearts.org/mlh/frame-mlh.htm
http://www.pediatricheart.org
http://www.petitiononline.com/chdhelp1/petition.html
http://www.savinglittlehearts.com
http://www.chdquilt.org/index.html
http://babyheartspress.com/poster2.html

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CHD petitions :

http://www.gopetition.com/petitions/media-...ss-for-chd.html (for awareness in the media)

http://www.ipetitions.com/petition/CHDpulseox/ (for requiring routine pulse-ox testing in newborns)
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Request a quilt block in honor of you heart child: http://www.chdquilt.org/index.html

We had one done for Jude when he was a baby, his on quilt #35, row one, block 2
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  #2  
February 7th, 2009, 07:42 PM
MellieB's Avatar Platinum Supermommy
Join Date: Nov 2005
Location: Melbourne, Aust.
Posts: 64,110
Heartkids Australia... has info and stories of heartkids

www.heartkids.org
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  #3  
April 15th, 2009, 05:10 PM
stacyp's Avatar Mommy to Andrew & Luke
Join Date: Nov 2005
Location: OHIO
Posts: 17,229
ABBREVIATIONS

ASD~ Atrial Septal Defect

CHD~ Congenital Heart Defect

CHF~ Congestive Heart failure

HK~ Heart Kid

HLHS~ Hypoplastic Left Heart Syndrome

IAA~ Interrupted Aortic Arch

MVP~ Mitral Valve Prolapse

PA~ Pulmonary Atresia

PDA~ Patent Ductus Arteriosis

PFO~ Patent Foreman Ovale

PPM~ Permanent Pacemaker

PS~ Pulmonary Stenosis
•valvar pulmonary stenosis - the valve leaflets are thickened and/or narrowed
•supravalvar pulmonary stenosis - the pulmonary artery just above the pulmonary valve is narrowed
•subvalvar (infundibular) pulmonary stenosis - the muscle under the valve area is thickened, narrowing the outflow tract from the right ventricle
•branch peripheral pulmonic stenosis - the right or left pulmonary artery is narrowed, or both may be narrowed


SVT~ Supraventricular Tachycardia

TA~ Tricuspid Atresia

TGA~ Transposition of the Great Arteries

VSD~ Ventricular Septal Defect
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Last edited by stacyp; April 16th, 2009 at 01:40 PM.
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