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My Appointments....


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  #1  
February 8th, 2009, 03:43 PM
*Firefly*'s Avatar Girlfriend and Blogger
Join Date: May 2006
Posts: 24,398
I have had nothing but first-rate care here in the UK, I had the best doctors and surgeons, and people that do echo-cardiograms on me now are surprised at how well I have done.

From birth for a while i had appointments every 3 months, and then 6 months, when I went to school (about age 5) I was going yearly, but when I got to age 6.5 they took me back to 6 months as I appeared to be growing at an increased rate to normal, I had a heart monitor strapped to me for around 48 hours during that time. After that I returned to yearly appointments, and my apointments have only just extended to every two years now that I have stopped growing and provided I keep my dentist appointments yearly.

I am at risk of endocarditis, this is easiest to cause through infection through the blood, thus no peircings, no tattoos (i have my ears peirced but thats it).

Throughout my appointments I have had x-ray's and ECG's every time and every other year an echocardiogram scan and a stress test (moving ecg) to determine how my heart copes with everything and how my heart has grown and developed with the operation.
__________________
Cause I know my weakness, know my voice,
Now I believe in grace and choice,
And I know perhaps my heart is farce,
But Iíll be born without a mask
~ Babel, Mumford & Sons



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  #2  
February 9th, 2009, 05:55 PM
stacyp's Avatar Mommy to Andrew & Luke
Join Date: Nov 2005
Location: OHIO
Posts: 17,229
Sounds like you are receiving excellent care. I am so happy you're doing so well.
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Thanks Yvonne (Jaidynsmum) for my beautiful siggy!














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  #3  
February 10th, 2009, 10:39 AM
5LilMonkeys
Guest
Posts: n/a
Sounds great. My DS has an awesome Card to. Right now he's going every 6mo. He had a repair done last year but I think we are heading towards another. UGH!!! Its amazing what they can do.
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  #4  
February 10th, 2009, 11:05 AM
*Firefly*'s Avatar Girlfriend and Blogger
Join Date: May 2006
Posts: 24,398
I only saw my cardio every other year from what i can remember, because my peadiatrician had trained in what i had he only deemed it necessary to see me every other year after a few years, i remember when I was llittle it was really daunting, they often had lots of doctors and student doctors around me, it's very scary when your 5 and theres like 10 adults in the room lol
__________________
Cause I know my weakness, know my voice,
Now I believe in grace and choice,
And I know perhaps my heart is farce,
But Iíll be born without a mask
~ Babel, Mumford & Sons



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  #5  
February 10th, 2009, 12:49 PM
stacyp's Avatar Mommy to Andrew & Luke
Join Date: Nov 2005
Location: OHIO
Posts: 17,229
I couldn't even imagine. Despite Luke having his repair @ 3months, I am glad it was younger than older for that reason... he won't remember.
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Thanks Yvonne (Jaidynsmum) for my beautiful siggy!














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  #6  
February 10th, 2009, 06:16 PM
*Firefly*'s Avatar Girlfriend and Blogger
Join Date: May 2006
Posts: 24,398
I don't know I sometimes wonder... I know everything that happened to me and I live with it every day, but I don't remember it so it feels really surreal and unreal at times if that makes sense, some parts of me wish I'd been older, but then others are so very glad i don't remember... theres no perfect answer too it
__________________
Cause I know my weakness, know my voice,
Now I believe in grace and choice,
And I know perhaps my heart is farce,
But Iíll be born without a mask
~ Babel, Mumford & Sons



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