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It's scheduled for July 27. at Hershey Med Center.
When I told Bill about it all last night when he got home he got very worked up. Very worried.
And it's pretty much all he talked about today and he kept doing research. Actually, he found stuff about lean cords I never read and it did not make us feel any better.
We are acting as though everything is going to be fine but we feel worried and scared. He told me"I can't imagine how you feel, but I know I can't go through that again. I will punch anyone who says anything wrong" He meant if we lose another baby....it will be almost unbearable. Plus I would have to give birth under those circumstances again. And this is a problem....we are both thinking as if she is going to be born dead.
UGHHHHHHHHHHHH!!!!!!!!!! And I know everyone wants to say don't worry, etc. But honestly, until they give us a reason not to, I don't believe anyone in our situation would be able to not worry. I mean...I'm 21 weeks and they are telling me exactly what they told me at the same exact point when I was pregnant with Roald. And while lean cords are not genetic...we read that "familial recurrences have been described". Plus....from whta we read they canot be diagnosed prenatally. So even if the level 2 shows nothing wrong except for that she is small...we are going to have the real possibility that she also has a lean cord...and from what we read on this very informative site...most babies with this problem are stillborn.
Kill me now. Or magically keep Vera safe and make it November so she can be born into our arms, safe and alive.
Sorry for the huge rant but I have so much emotion going on right now.
Bonnie, I am emailing my sister about this tomorrow morning. She is a genetic counselor, so she's an expert on "family recurrences". When you say lean cord, do you have a more specific term? Was it a velamentous insertion? Two vessel? Let me know if there are any specifics, and I will be sure to ask her about it tomorrow.
Rebecca-Roald had a very thin or lean cord with a severe Wharton's jelly deficiency...his real cause of death was determined to be "umbilical cord stricture" which can also be called cord contriction. Basically it means for some unknown reason baby's cord is very thin and has no Wharton's jelly where it meets baby's body, making fatalities very likely since the cord cannot withstand the usual twisting and tugging a healthy cord would. It is not a genetic problem but there have been cases where it has happened twice for people and one case in which a woman lost 3 babies to this same problem. Some sources say it CANNOT be diagnosed prenatally, while some say "it can be diagnosed with ultrasonography" (however I don't know if that is theoretical or actually PROVEN).
Babies are usually small for gestational age and fatalities usually occur circa 21 weeks (Roald died about 24 weeks and I had him at 24 weeks 6 days). I'm 21 weeks now. So who knows. All I know is we are going crazy. But we are already going shopping and everything since setting up the nursery will help plant the idea that she could be healthy and born alive more firmly into our heads.
She's at work now, but I'll try to get a hold of her tonight or tomorrow (I think she's off) to see what she knows. I did some googling myself, and I was unable to find any evidence of this type of cord structure abnormality recurring in subsequent pregnancies. "Thin Cord Syndrom" was first described in 1961, so they have 4 decades of information to back them up. You've described cases where it did recur, but that seems to be more horrible luck than a genuine genetic trend. Not that that will silence your fears of course. I'm going to go onto PubMed later and see what else I can dig up. Did the sonographer say anything about Vera's size? Because if she's normal size then that would seem to indicate that there isn't a thin cord problem.
Rebecca-Yes, she is small for her gestational age. That is exactly why we are freaking out. At my 21 week ultrasound with Roald he measured a week small. They didn't tell me 'til 6 days later. This is how it went:
Oct 23-21 week ultrasound
Oct 29-told he measured small, ultrasound slated for Nov 19
Somewhere circa Nov 10-Roald died
Nov 13-found out, labored Nov 14, born Nov 15
It makes me sick. I was exactly 21 weeks when we had Vera's ultrasound and she said she was measuring 19 weeks 6 days. But at her 11 week U/S they said she was pretty much perfect size, which makes me think my dates are very correct and she is small for some reason or another. Of course I am scared she is small 'cause of her cord. It just sucks because they are telling me the same thing they told me with Roald at the exact same time in gestation. So I am scared she's got a maximum of 3 or 4 weeks to live. I shouldn't do that but it's hard.
Meghan-sure, I will send you what we found. Bill saved it all somewhere so let me dig it out and I'll send it to you.
So I just got off the phone with my sister. She said that there is only one kind of umbilical defect that has any risk of recurrence, and that is an extremely short cord, and that's only if it occurs as part of a particular syndrome. Thin Cord Syndrome does not recur. The cases you mentioned are fantastically rare occurrences.
She said that the level 2 ultrasound is probably because you have a history of stillbirth. Vera may be measuring small because some healthy babies do that sometimes, but because of Roald they want to be sure.
My sister recommended that you call your doctor, explain to him that you are anxious, and ask him why he ordered the level 2 ultrasound. Then you at least know what to worry about.
I won't tell you that everything is fine, because I don't know that. But when I googled, I found this: Thin Umbilical cord. So clearly thin umbilical cords can be seen on ultrasound, and it looks like they monitor closely and then do a c-section.
I hope this helps. What I really want to do is give you a hug
Thank you Vicki for my awesome siggy!!
Last edited by rebeccabaltimore and more; July 16th, 2009 at 04:11 PM.
One other thing to consider....if you're really worried about it.....can you call Hershey Med back and see if they can change the date of your u/s? I know that when I go to the Perinatalogist, the OB's office makes the appointment for me, but if it's not convenient, I'm supposed to call and change it. Would that be a possibility? Could you call them directly and explain the situation to them and see if they can move it up any into next week? Just a thought.
My precious angel DS#2:
My rainbow DS#3:
My Princess #4:
I am sorry you are going through even more stress. Can you call and ask for your u/s to be moved up? I thought they could tell if there was a cord problem with the blood flow in the cord? I will be thinking about you and Vera.
Owen, Avery, Samantha and forever missing Jake born still 08/01/99.