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  #1  
April 21st, 2009, 02:41 AM
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I'm not really sure if I belong here or not, but I couldn't find another place that seemed appropriate, so I figured I'd come here.

Ok, so I was diagnosed with type 1 diabetes about 2 months ago. This is all still very new to me and my family, and we are trying to deal with it together. My wife has been great as far as supporting me and helping me get adjusted to checking my sugars, adjusting my diet, and giving myself insulin shots (she's even learning how to do them, and she's terrified of needles), but I'm not sure about my girls. They are 3 and 2 (my son is only 3mos, he's really unintreasted in what is going on outside of him), and while they are young, they know what a shot is and what blood is, they've both seen my check my sugars and my eldest has seen me give myself an insulin shot. We've sat them down and tried to explain that Mama (me) has to give herself shots to stay healthy, but they don't really get how I'm sick, since I pretty much do everything I did before I "got sick" and it's not like I have a fever or runny nose (that's what my younger girl said), so they don't really understand it. I hate having to tell them we don't really know how mama got her "sickness", all the stuff on-line that they can understand talks about healthy diets and getting excersize, two things I always did. And then a cousin of mine told Robyn about this movie 'bout real hard flowers (Steel Magnolias) where a mommy had diabetes and died 'cause she became a mommy (my cousin is 5 by the way), so now she's terrified I'm going to die because I'm a mommy with three kids and she only had one and died. The girls know they are adopted, we talk about it often in ways in they can understand, but they are having problems making the connection that it wasn't because she was mommy but because it was dangerous for her to have a baby like their other mommy did (my wife carried our son).

I'm just wondering how the rest of the mommy dealt with questions like these, or if anyone has any ideas on how I can better help them understand? I swear, had Hannah Montana just showed the dang episode with Oliver dealing with diabetes this would be so much easier, but oh no, Disney can't help a mother out.
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Athena and Angel
Mama and Mommy To
Robyn 6 12/05, Regan 5 10/06
Gerard 3 12/08 and baby Daria 05/11
And expecting baby number 5 this fall!

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  #2  
April 21st, 2009, 06:25 AM
MrsStuartD's Avatar Platinum Supermommy
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Location: Ontario, Canada
Posts: 23,164
I think you came to the right place We all have different disabilities here. I myself have fibromyalgia. For me sometimes I can't have my kids sit on me or climb up on me because it can be too painful. I explain that mommy has pains in my muscles and we'll snuggle side by side instead today.

In your case things are a little different. Have you thought of bringing your 2 oldest with you to your next doctors appointment? Give them an opportunity to talk to your doctor about their questions. Have them see the doctor tell you how things are going. Let them be part of it?

It's great that your partner is so supportive and willing to help. I find with kids having both parents giving the same answers helps a lot. Answering the questions with direct and honest but short answers usually is enough. Kids are naturally curious and loving beings. It's great that you are not hiding it from them. Just reassure them that you are taking your shots and eating right so that you can stay strong and healthy and that you are fine. They just need extra love and support until they get a little older.
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  #3  
April 22nd, 2009, 02:25 AM
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That's a great idea! I usually find someone to keep an eye on them for my doctor's appts, but I think I will bring them along with, I have a great doctor who could probably really help them understand whats going on...at least to some degree.
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Athena and Angel
Mama and Mommy To
Robyn 6 12/05, Regan 5 10/06
Gerard 3 12/08 and baby Daria 05/11
And expecting baby number 5 this fall!

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  #4  
April 22nd, 2009, 11:21 AM
pmdc5286's Avatar Mega Super Mommy
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Sorry I am just now getting to your post. Its been a rough couple of days. I am Patty, the host of the board here.

First off, you most certainly do belong here. We are here to help you deal with your medical conditions and disabilities. Kids at that age are naturally both scared and fearful. I also second taking the oldest to the doctor with you. It may help by letting her ask the dr somequestions and the dr reassure her that you are ok. I know my son will not hesitate to ask my neurologist a question if he is there with me and my neuro will explain it to him.

Education of the kids is the big key in helping to eliminate a lot of their fears. It has gone a long way with my kids. Especially my son, because he remembers what mommy was like before you got sick. He remembers me working on the ambulance and being able to do lots more fun stuff. My daughter has never known that, as I got sick before she was born.

I have a condition called psuedotumor cerebri where my brain makes spinal fluid faser than my body can reabsorb it, causing really bad headaches and increased intracranial pressure. I have a shunt in to help with this, but it has malfunctioned, causing stokes. I have had to have it replaced twice. I have had a total of 3 brain operations and 4 strokes. I have been fortunate to recover fome the strokes though.

Sorry I am just now getting to your post. Its been a rough couple of days. I am Patty, the host of the board here.

First off, you most certainly do belong here. We are here to help you deal with your medical conditions and disabilities. Kids at that age are naturally both scared and fearful. I also second taking the oldest to the doctor with you. It may help by letting her ask the dr somequestions and the dr reassure her that you are ok. I know my son will not hesitate to ask my neurologist a question if he is there with me and my neuro will explain it to him.

Education of the kids is the big key in helping to eliminate a lot of their fears. It has gone a long way with my kids. Especially my son, because he remembers what mommy was like before you got sick. He remembers me working on the ambulance and being able to do lots more fun stuff. My daughter has never known that, as I got sick before she was born.

I have a condition called psuedotumor cerebri where my brain makes spinal fluid faser than my body can reabsorb it, causing really bad headaches and increased intracranial pressure. I have a shunt in to help with this, but it has malfunctioned, causing stokes. I have had to have it replaced twice. I have had a total of 3 brain operations and 4 strokes. I have been fortunate to recover fome the strokes though.
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  #5  
April 27th, 2009, 04:40 PM
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Hi Patty! Your condition sounds scary and painful, I hope you're doing ok!

I think Gee (my son) will be different then Robyn and Regan (my daughters), especially Robyn. She's still pretty young, but she remembers that mama didn't used to prick her fingers, Regan may or may not remember, and Gee defenitly won't remember. He's 4mos tomorrow, so he really isn't pay much attention to anything that doesn't involve him directly .
__________________
Athena and Angel
Mama and Mommy To
Robyn 6 12/05, Regan 5 10/06
Gerard 3 12/08 and baby Daria 05/11
And expecting baby number 5 this fall!

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